Annual Chromosome 18 Conference 2018 Part 7

Hey, everyone! I just got back from a trip to Baltimore for the annual Chromosome 18 conference. This blog post is a summary of what I did at the Chromosome 18p- conference this year. I hope you enjoy reading this blog post. In case you’re wondering, the links are Thomas’, Camilla’s, and Chromosome 18’s website.

Here are some similar blog posts: http://lilliandarnell.com/2018/06/15/my-adventure-to-surprise-part-1/ and http://lilliandarnell.com/2017/09/13/annual-chromosome-18p-conference-2017/. Anyway, I hope you enjoy!

July 5th: 

I woke up with my leg feeling sore from dancing hard the previous night. Anyway, I got dressed and ate breakfast and got ready to go for a walk around the Riverwalk. Camilla, Thomas, and I walked for about 30 minutes.

Afterward, we came back hot, hungry, and sweaty. So we ate lunch and eventually went down to the lobby. In the lobby, we waited until 3:50 pm for a Lyft driver to take us back to the airport.

At the airport, I was bored so I Facebook Messaged Macy while I was waiting to pre-board the plane with Camilla and Thomas. Right at 6:00 pm, we took off for McCarran International Airport.

During that flight, I wrote a story called A Brave Girl. (Click on the link to read the story). Anyway, I had Fritos, juice, and water on the flight. I also played games, read books, looked out the window, and took pictures.

On the way there, I saw tons of halos around the sun and a magnificent Nevada/Arizona sunset which was amazing welcoming us to Nevada. I walked around without holding Camilla’s hand.

I even went to the public restrooms all by myself.

Anyway, at 8:30 pm, we had plenty of time to wait so we took our time this time. When we finally sat down, I Facebook Messaged Patty and Macy letting them know we made it to Las Vegas.

At 11:00 pm, we preboarded the plane again. The plane was an old Southwest Airline plane. Once we took off, I was tired but didn’t go to sleep. Before I knew it, it was 11:50 pm and we were hovering over Reno.

At midnight, we got off the plane very tired. The airport was surprisingly very quiet and empty.

I even managed to walk through the whole airport without holding Camilla’s hand. Anyway, we made our way back to our car. Once we got some things unpacked, we all got ready for bed.

That is the end of our enjoyable adventure.

Gorgeous Flowers.

Pretty pink flowers.

Amazing flowers!

Along the riverwalk.

A Brave Girl

Hey, everyone! I wrote this story on July 5th inspired by a daydream I had for a year. The character’s name is based on Macy Miller (a close 18p- friend of mine). I hope you enjoy!

Once long ago, there lived a young girl named Macy Helens who was afraid to fly on an airplane. One day though, her parents who were named Hannah and William announced that they were going on a family vacation but they needed to take an airplane to their destination.

Hannah had made a smart decision to use this vacation to help Macy get over her fears of flying. So Macy was scared but she knew she had to overcome her fears eventually. So Macy agreed to go. They left the next morning.

First, they went through TFA (The Fairy Association which is similar to TSA) and Macy wasn’t even scared but she was proud of herself. Macy handled the searching for a gate number, waiting, and the walking quite easily. The hardest thing was getting on the plane but she told herself not to look down.

It worked perfectly. Once they were about to take off, Macy was afraid of the steep incline that what she did was look out the window for familiar sights. Macy saw circular rainbows, a beautiful sunset, and a gorgeous sunrise as well. She was very impressed. Finally, their flight landed and Macy was very happy and proud.

Rainbow around the sun

My Adventure To Surprise Part 13

Hey, everyone! I went to Surprise, AZ for the end of May/beginning of June with my grandparents (also known as The Romano Duo). I would just like to share my adventure with you. By the way, some of the times aren’t accurate. Anyhow, I hope you enjoy!

June 9th, 2018:

I woke up at 7:10 am and we got into the car at 9:00 am but we stopped by the store so Frank could get gas, Patty could get breakfast, and have fun. Anyway, at 10:00 am we were on our way.

The Motel 6 had some decent beds. I was really comfy at 7:10 am so I didn’t want to get up at all. I knew that I had to get up sooner or later though. Once I was out of bed, I was very relaxed and refreshed.

At 12:00 pm, Frank stopped at a gas station. I also ate my lunch when Frank stopped at the gas station. After 12:00 pm, we drove to Fernley and saw the Love’s gas station where Frank stopped for gas the last time.

I saw the mountains that hide Reno and Sparks shortly around 2:26 pm which is always awesome to see. Around the same time, we arrived back in Reno. This is where the 2-week vacation ends.

Selfie of me

That’s the end of My Adventure In Surprise! Thanks to Patty and Frank for making the trip a great experience!

My Adventure To Surprise Part 11

Hey, everyone! I went to Surprise, AZ for the end of May/beginning of June with my grandparents (also known as The Romano Duo). I would just like to share my adventure with you. By the way, some of the times aren’t accurate. Anyhow, I hope you enjoy!

June 8th, 2018: 

I woke up at 8:00 am with itchy ankles. When I went into the living room, I noticed familiar swollen bumps (mosquito bites). So I spent the day trying to stay off my ankle but I did get up to pack a few things throughout the day.

I ate lunch at 1:00 pm. I also colored that afternoon until evening. After dinner, I colored until 9:00 pm. I started my schedule and finished at 9:35 pm leaving me 35 minutes to spare so I started playing games on my phone until it went dead.

By that time, it was 9:57 pm so I just helped Patty and Frank with decisions for the trip back to Reno until 10:00 pm when I got into bed. I tried to go to sleep at 11:15 pm but realized I needed to go to the restroom so it wasn’t until 11:30 pm when I went to sleep.

Mosquito bites on my ankle

Mosquito bite on the bottom of my foot

See part 12 here

My Adventure To Surprise Part 10

Hey, everyone! I went to Surprise, AZ for the end of May/beginning of June with my grandparents (also known as The Romano Duo). I would just like to share my adventure with you. By the way, some of the times aren’t accurate. Anyhow, I hope you enjoy!

June 6th, 2018:

I woke up around 8:00 am. I decided to have a resting day. After breakfast, I played on my phones and read. After lunch though, I got ready to get in the pool and only stayed in the pool for 30 minutes.

Afterward, I got dressed and headed into the living room to color some more in the giant coloring pad.

After dinner, I continued coloring and played on my phone some until I started my schedule. As usual, I got in bed at 10:00 pm but stayed awake until a little past midnight.

As you should know, I went to sleep past midnight.

June 7th, 2018: 

I woke up around 7:00 am. So I got up and decided to feel relaxed until the end of my trip. Anyway, I ate breakfast and decided to color in the giant coloring pad. I started feeling hungry again. After I ate, I colored more, read, and played on my phone.

After dinner though, I started coloring some more. Afterward, I took a long break and sat outside until I had to do my schedule. I managed to get into bed at 10:00 pm. I went to sleep shortly after midnight.

Me with a pool noodle

Me with Frank Romano

Amazing sunset

Gorgeous sunset

See part 11 here

My Adventure To Surprise Part 7

Hey, everyone! I went to Surprise, AZ for the end of May/beginning of June with my grandparents (also known as The Romano Duo). I would just like to share my adventure with you. By the way, some of the times aren’t accurate. Anyhow, I hope you enjoy!

June 2nd, 2018:

I woke up around 8:00 am that morning. I was excited to start a new day in Surprise, AZ. I got up and started the day just like any other day. After breakfast and candy, I played on my phones and read a little. After lunch though, I was talking to Patty and Frank.

I also worked on a blog post which is http://lilliandarnell.com/2018/06/05/fundraising-for-the-2018-chromosome-18-family-conference-happy-world/ if you want to check it out.

After dinner, we started watching a movie on Patty and Frank’s TV (don’t care about TV but I was bored so I was grateful for something to do). Around 5 minutes into the movie, I stepped out front to see how hot it was.

It was a warmish kind of hot that night so Patty, Frank, and I went on a short walk to the empty park. I took a couple of pictures as well that day.

Once we got back, we started the movie back and finished watching the movie shortly after 9:00 pm. Afterward, I started doing my schedule. I finished up and got in bed at 10:00 pm. I stayed awake until 2:00 in the morning.

Me messing with an old-fashioned selfie stick.

Me with Patty

Tree. A little blurry though

Lamppost light shining on a tree.

See Part 8 here

My Adventure To Surprise Part 6

Hey, everyone! I went to Surprise, AZ for the end of May/beginning of June with my grandparents (also known as The Romano Duo). I would just like to share my adventure with you. By the way, some of the times aren’t accurate. Anyhow, I hope you enjoy!

May 31st, 2018:

I woke up around 9:00 am and just hung around the house all day.

Anyway, it was a little bit of a relaxing day for me. Around 9:30 pm, I coded and got ready for bed (regardless, I was very tired). I hit the pillows late that night again (What I mean by that is I fell asleep).

June 1st, 2018: 

I woke up around 7:00 am. Anyway, I took my time waiting for Patty to be done in their bedroom. Before breakfast, Frank said, “Happy National Donut Day” as I told him the day before. After breakfast, I wrote a lot. After lunch, I had a bit of fun swimming.

I also wanted to add that I finished a blog post which is: http://lilliandarnell.com/2018/06/01/how-donuts-came-to-be/ sometime that day.

After swimming, I got dressed and had Frank get the powdered donut out of the donut package (we got them sometime that week). After dinner, I talked to Patty and Frank some.

Anyway, I started getting ready for bed after a conversation with Patty and Frank. Afterward, I got in the bed around 10:00 pm even though I stayed up way later than that. Shortly around 12:30 pm, I fell asleep.

Hawaiian flower

See part 7 here

My Adventure To Surprise Part 3

Hey, everyone! I went to Surprise, AZ for the end of May/beginning of June with my grandparents (also known as The Romano Duo). I would just like to share my adventure with you. By the way, some of the times aren’t accurate. Anyhow, I hope you enjoy!

May 27th, 2018: 

I woke up not knowing where I was for a second then decided to look on my phone and time said 7:00 am so I just laid there until 7:30 am and then I went to the restroom. Afterward, I had Patty make my brunch (since it was almost lunch time) and I ate it all.

After I finished, we went to Kohl’s and found me some new clothing. After I got back, I was hungry so I ate a snack. It was 4:58 pm when I finished my snack. Luckily though, we didn’t eat dinner until 6:00 pm.

About the same time I was eating the snack, I worked on a blog post: http://lilliandarnell.com/2018/05/29/fundraising-for-the-2018-chromosome-18-family-conference-rainbow-of-emotions/. I also arranged to see one of my friends named Katie who lived in Glendale, AZ at around 6:00 with help from Patty and Camilla. So I was excited about that.

After that, I went back to what I was doing (which was coding). After, I waited until midnight to do my schedule. So it was around 1:00 am when I went to bed that night but I stayed awake until 2:00 am that night.

Cactus In Surprise, AZ. Note: This photo is from Google Images.

See part 4 here

The Hummingbird Fairy Wings

Hey, everyone! I got the idea to write a story about a hummingbird when my grandmother Patty of the Romano Duo remarked,”The hummingbird wings look like little fairy wings.” in Surprise, AZ when I was visiting Surprise, AZ. Thank you, Patty! Anyway, I hope you enjoy!

Once many years ago, there lived a hummingbird named Abby who was very curious. One day, Abby wondered, “Why do I have such small wings?”. So Abby asked her mother and her mother responded, “Well, there was a fairy named Rebecca who was very curious just like you, Abby.”

Abby’s mother paused for effect. Abby’s mother continued her story,”One day, Rebecca saw some flowers that had delicious nectar and she starting eating nectar. Suddenly, Rebecca noticed a sudden tingling coming from her wings. ”

Abby’s mother smiled and stopped to catch her breath. Abby said impatiently,”Hurry up, mother! I want to hear more of the story.” Abby’s mother said, “Ok, I was just catching my breath.”

“Rebecca wondered what was happening and asked her mother what happened. And like me, her mother told her the answer through a story. By the time her mother finished the story, Rebecca turned into a hummingbird.”, said Abby’s mother knowingly.

“So Rebecca went to a wizard to get a special spell that would allow her to swap back and forth between a fairy and a hummingbird. And she still can be found today as a fairy and hummingbird.”, explained Abby’s mother. After Abby’s mother finished her story, her mother asked, “Would you like to know a secret?”.

Abby said excitedly, “Yes, please!”. So her mother said, “I am Rebecca. That is my secret now.” Rebecca laughed when Abby said, “I knew there was something magical and musical in you.”

If you see a hummingbird, that may be Rebecca or Abby flying by. Anyway, that’s the end of the story. I hope you enjoyed!

Queen Of Earth

Hey, everyone! On April 22nd which was Earth Day, I felt inspired to write a story about the Earth. Here are some related stories: http://lilliandarnell.com/2018/04/23/the-back-of-black/http://lilliandarnell.com/2018/04/17/why-ladybugs-wear-black-and-red/, and http://lilliandarnell.com/2018/03/23/why-trees-dance-in-the-wind/. I hope you enjoy!

Once long ago, there lived a girl named Alana who loved to smell the Earth and talk to the Earth. Her parents were King Hendricks and Queen Dahlia. Her parents reigned the Earth together.

Many years went by and Alana grew into a young lady. One day when Alana was picking flowers and the Earth spoke.  Earth asked, “How would you like to be my queen like your mother when you’re older?”.

Alana said, “Yes, Earth!”. A couple more years went by, and Alana was now the queen of Earth. Alana’s queen name is Queen Eve but her real name was still Alana for non-formal events.

Alana married Stellen a couple of years later and the Earth even invited him to be the King like Alana’s father years ago. So Alana and Stellen reigned the Earth just like Alana’s parents did many years ago.

Stellen’s king name was Marthur but just like Alana, his real name was still Stellen for non-formal events. A year passed and the couple had a baby. Her name was Lalani. The Earth liked Lalani’s name.

Lalani lived the same life as her parents and her grandparents before her. So if you hear voices inside the Earth, that might be Latani and her family. That’s the end of the story. I hope you enjoyed!

Earth