The Annual Chromosome 18 Conference 2019: Part 5

Hey, everyone! I just got back to Colorado Springs from the conference on July 27th. This blog post is a summary of what I did at the annual Chromosome 18p- conference this year. In case you are wondering, these are Thomas’s, Camilla’s, mine, and Chromosome 18’s website.

Here are some related blog posts: http://lilliandarnell.com/2018/07/06/annual-chromosome-18-conference-2018-part-1/http://lilliandarnell.com/2018/06/15/my-adventure-to-surprise-part-1/http://lilliandarnell.com/2017/09/13/annual-chromosome-18p-conference-2017/ I hope you enjoy!

July 22nd: 

I woke up around 7:00 am to Camilla closing the blackout curtains so we could sleep a little longer. So I went back to sleep and winded up waking up at 11:00am. My grand aunt Debbie Burton had already landed at the Denver International Airport by that point.

So I messaged her to keep her company while she was waiting on Patty and Frank (the Romano Duo) to get there. I also kept Patty company through text throughout the day. Almost everyone wondered where I was including Rebecca and Macy.

I also took a shower (that was an accomplishment around Christmas 2018) and it felt so natural because I had done it at Patty and Frank’s home many times there. Afterward, I ate a few crackers before going to meet up with Macy by the elevators.

In the conference rooms,  I ate some of my assigned lunch served by the Marriott staff but provided by the registry slowly and cautiously. After I finished eating, I messaged Patty and found out they got stuck in the same traffic near Glenwood Springs.

Knowing that Patty overheated easily, I asked if they pulled over at the White River National Forest. Patty messaged me saying they did but just got back on the highway. After that, they got out of the traffic jam.

Then I went up with Macy to roam around the hallways. I messaged Debbie again to check on her as Patty was worried that she wasn’t okay sitting there all by herself. So I messaged Patty to tell her that she was okay.

I asked Patty what room number they thought they would get. Then Macy and I headed to our hotel room so we could hang out with Camilla. Afterward, Macy and I headed to her family’s hotel room so Macy could go to the restroom.

After that, we went back down to the lobby and I sat with Macy outside the Self Advocate Room for a minute before realizing I was getting nauseous again so I told Macy and then I went back up to the hotel room alone,

Of course, I wasn’t very happy that I had to leave Macy sitting there alone so as soon as I got up into the hotel room I messaged Macy to let her know I was resting in the hotel room.

In return, she told that she was in the Self Advocate Room again. Eventually, I found I was able to not be nauseous while sitting down so I went down to the lobby and stayed sitting there.

Rebecca and Lauren eventually came over to sit by me while I did things on my phone & message Debbie and Patty. Camilla eventually came down and she asked if I wanted more water. I said yes so I got up so I could order water with Camilla’s help.

I eventually started getting nauseous again. Once I got back to the couch, I got a message from Macy asking where I was. I told her that I was over by Rebecca and Lauren. I eventually got up so I could go with Macy to roam hallways again before she had to go back down to the self-advocate room.

I eventually went back down to the lobby with her. I asked Patty and Frank what their estimated time for their arrival was. She said 4:05 pm the first time then said 4:30 pm the next time.

At 4:00 pm we went outside for a group photo. While we were out there, I saw many cars that looked very close to Patty and Frank’s car. Right when Macy, Lauren, and I sat down together, Patty, Frank, and Debbie came through the doors.

Frank went to register Patty, Debbie, and himself. Debbie went looking for the restrooms. While Patty talked with Camilla and met Macy. Then Debbie came back to join Patty and Frank eventually came over.

Patty gave me the hotel room key. Then after I saw Macy off. I saw Debbie, Patty, Camilla, and Frank waiting for an elevator so I joined them. I got off on the 4th floor while everyone else got off the elevator on the 6th floor.

I eventually went to the lobby where they were eating. I also saw Macy’s father and mother eating together. I pointed it out to Camilla and eventually, Macy’s father came over to introduce himself. Macy’s mother looked over at me and asked me if I was still going to Olive Garden.

And I told her that I think I would. Macy’s mother asked if Macy would text me when they are done at Bulid-A-Bear and I told her yes. After Patty, Debbie, Frank, and Camilla got done eating I headed outside with them.

It felt very good outside. I then headed up to their room with them. While I was up there, Macy messaged me saying they were almost at Olive Garden. I then got Camilla to drive me there in the dark.

I then ordered french fries and a straw for my water. I winded up spilling water on the table but luckily no one noticed but me. It was a little too full for me. I then got my french fries.

It was a very small portion of french fries so I was able to eat all of them without it upsetting my stomach luckily. Macy finished shortly after me. At around 10:00 pm, the first Marriott shuttle arrived. Macy and I got on together. We sat together too.

Lauren was on the other side of Macy. I was happy but tired. Macy had to go straight up to her hotel room and Lauren and I went up too. I dropped Macy off by her hotel room. Then I headed to our room to drop off the money then I went to find Camilla in the lobby.

Of course, Camilla was talking with friends. I talked some too. It was 11:00 pm when me and Camilla headed up to the room. I then got ready for bed. Then I played on my phone a little until my eyes would barely stay open so I got up to go to the restroom.

After that, I went to sleep at around 1:00 am or 2:00 am.

View of the mountains from our hotel room. Taken by me!

The view from our hotel room. Taken by me!

What is your favorite hotel so far? I would love to see your answers in the comments if it feels right to you!

Part 6 will be here soon… Stay tuned!!

The Annual Chromosome 18 Conference 2019: Part 4

Hey, everyone! I just got back to Colorado Springs from the conference on July 27th. This blog post is a summary of what I did at the annual Chromosome 18p- conference this year. In case you are wondering, these are Thomas’s, Camilla’s, mine, and Chromosome 18’s website.

Here are some related blog posts: http://lilliandarnell.com/2018/07/06/annual-chromosome-18-conference-2018-part-1/http://lilliandarnell.com/2018/06/15/my-adventure-to-surprise-part-1/http://lilliandarnell.com/2017/09/13/annual-chromosome-18p-conference-2017/ I hope you enjoy!

July 21th: 

I woke up around 11:00 am. I took my time eating brunch and getting dressed. It was around 12:00 pm when I finally went down to the lobby. I sat down in a comfy chair so I could text Camilla where she was in the lobby.

I saw Emmalee Bauknecht (an 18p- friend of mine; first attenders) and her mother while I sat there along with another friend who attends the conference every year. After a while, I got a message from Camilla saying where she was.

She was in the restaurant with Thomas and his friend, sibling, and Camilla’s friend. She ordered some french fries. I went to the restaurant to grab the water Camilla ordered for me.

Then I found a spot in the lobby that had a table next to it and had a good view of the lobby doors so I could see if Macy or Lauren came through the doors. It was a very comfy couch, I must say.

Camilla came to give me french fries that she ordered for me. The french fries were delicious. If you are wondering, I had them as a snack. Then I dropped off the french fry box off where Camilla was sitting.

I headed up to the room to look at the storm clouds a little better. After that, I came back down and sat down on a similar couch and a similar view of the doors. Macy and I messaged each other for a while.

I even took a selfie just for her. Around 4:00 pm before Camilla went to get nametags, she talked to one of her friends and I saw Macy’s father come into the hotel to check-in and get their hotel room.

Shortly after that, Macy and her sister, as well as her mother (one of Camilla’s friends), came in through the doors. Once I said hey to Macy, her family went up to their room with their things.

So Camilla and Thomas went into the conference registry room. After I stayed in the lobby for a minute or two, I went into the conference registry room and hung out in the entrance of the room.

I got a message from Macy asking where I was because she was in the lobby looking for me. She found me as I was about to go find her in the lobby and of course, we giggled at it (hint; giggling duo!). Camilla eventually came over to us.

Macy and I stepped outside to get our picture taken by Camilla. Then we went inside, Macy asked how to get to the outdoor pool so I showed her how to get out there. We went up to roam around the hallway floors and show each other our hotel rooms.

Right before Camilla and Thomas left to go to the Garden of the Gods, I thought I had lost the room key. So I asked the front desk for a new one using my phone; it was a major accomplishment for me.

Once Macy and I did that, we headed back up to my hotel room. We stopped by so Macy could glance at the indoor pool on the second floor. Afterward, we headed down to the lobby at 4; 00 pm to sit down and I took the opportunity to charge my phone.

I found a place nearby so I could keep an eye on my phone while I was sitting down. While I did that, Macy and I chatted some. Eventually, they again invited us to a restaurant.

This time there was a twist. It was a Mexican place instead of a pizza place but I didn’t mind just so long as Macy and I got to hang out some. So we drove there; Macy and her family arrived there first.

Of course, Camilla got lost but winded up finding it after a U-turn. So we headed into the restaurant and found Macy and her family. The restaurant was called Los Palmitas by the way.

I had some of the tortilla chips while I waited for food. I naturally had french fries. It was almost hard to stop eating them. Once we got back, the opening social had started. Unfortunately, I didn’t go because Camilla told me it would be loud.

So I just waited for Macy to come back but she had to go back out so she could get something at 7:00 pm. Just before 7:00 pm, we heard thunder and saw lightning. The thunder had scared Macy.

She was afraid the power would go out. Just in case, I put my flashlight in my bag. Right around 7:00 pm, it started raining. At around 8:00 pm, I went down to the lobby again. Most people were in the lobby again so I was able to hang out and be social at the very end of the opening social.

I even managed to show a few people the coloring page. I showed Lauren and Macy. They liked it a lot. Lauren’s mother, Macy’s father, and Macy’s mother saw it too and they liked it too.

I went back up to the room at around 10; 00 pm but went back down with Camilla around 11:00 pm. We spent 30 minutes talking and being social before heading up to the room.

I started getting ready for bed when I got nauseous. (Psst… I won’t go into full detail on this because it’s nasty stuff). I finished getting ready for bed and I played on my phone some before attempting to sleep.

I slept for only two hours before I woke up to Thomas being sick in the bathroom which made me sick. I immediately knew that the whole vacation would change. It wasn’t until 5:30 am that I got back to sleep.

A selfie of me! Taken by me, of course!

Me And Macy Reunited At Last! Taken by Camilla Downs

What is your favorite restaurant to eat at? I would love to see your answers in the comments if it feels right to you to answer!

Click here for Part 5. 

The Annual Chromosome 18 Conference 2019: Part 3

Hey, everyone! I just got back to Colorado Springs from the conference on July 27th. This blog post is a summary of what I did at the annual Chromosome 18p- conference this year. In case you are wondering, these are Thomas’s, Camilla’s, mine, and Chromosome 18’s website.

Here are some related blog posts: http://lilliandarnell.com/2018/07/06/annual-chromosome-18-conference-2018-part-1/http://lilliandarnell.com/2018/06/15/my-adventure-to-surprise-part-1/http://lilliandarnell.com/2017/09/13/annual-chromosome-18p-conference-2017/ I hope you enjoy!

July 20th: 

I woke up around 10:30 am feeling happy, excited, and relaxed. Camilla was making coffee using a noisy coffee maker the hotel had which woke me up accidentally. I didn’t mind though because I was very excited.

Shortly after that, I messaged Macy for a little bit. Of course, Macy messaged me first. We messaged each other for about an hour. I got upset over food, time & taking a shower while  Camilla and Thomas were getting ready to go out to a vegan restaurant around 11:00 am.

It took me about an hour to calm me down. Then I slowly started to eat but I got distracted and soon Camilla and Thomas were back in the hotel room. I took my shower and felt very proud of myself for taking a shower.

Camilla went back down to the lobby to eat her lunch and I asked her to take my lunch down to the lobby for me. So she did. I dried off until I was dry minus my hair. I got dressed and got my bag ready to head down.

After I did that, I went the wrong direction accidentally and I had to turn back. So once I found the elevator room, I hit the down button. Once inside the elevator, I pressed the “L” for the lobby. I was down very quickly.

There I saw Katie and her mother. She actually wondered when I would come down. After that, they went to check on their hotel room. I proceeded to sit down in the lobby to eat.

One of Camilla’s friends asked if I went swimming and Camilla said that I had just gotten out of the shower which was true. After she was done talking to Camilla, another one of Camilla’s friends (also a former DJ) with his wife came by to talk to us and so his wife could meet us for the first time.

I messaged Macy while the former DJ talked to Camilla. Of course, at one point, he noticed I was messaging someone and asked who I was texting. I told him, Macy and he said of course.

After he and his wife were done talking to us, I finished eating lunch then I went up to the hotel room so I could grab my sunglasses. Then I headed back down to the lobby so I could check out the outdoor pool and patio. Camilla went out with me the second time.

She headed inside the pool to talk to some of her friends. I went up to the pool to set down my water and bag but not my phone. During that time, thunder was rumbling. I said,” Don’t you dare rumble at me! Is that right?” at the thunder.

I immediately sent a message to Patty and Frank and took a selfie with the dark cloud. The lightning kept getting closer. When I left my room key in the room, I went up to grab it but I got caught in a downpour. So I took a shower outside kinda sort of.

I also took pictures of some flowers too during the rain being careful not to get my phone and book too wet. I saw a friend of mine in the lobby and she asked me if I was excited for Macy to come tomorrow. And I told her that I was with a smile.

Once I got up to the room, I got the room key and I watched the rain and wind for a minute before going back down.

Around 4:00 pm, I headed back up to the room and once I got up there. It started hailing outside. The thunder was nearly ear-deafening and the lightning was almost eye-blinding.

During that time, I attempted to Facebook Video Chat Patty and Frank (aka the Romano Duo) to try and show them the room. Of course, the wifi wasn’t cooperating right, the hail and the thunder made it difficult to show them.

I still managed to show them the room anyway. I messaged Macy to tell her two knock-knock joke.

After that and the storm calmed down, I went down to the lobby to see if anyone I knew was there around 4:30 pm. I checked my Facebook on my laptop.

Then I headed back up again until 6:30 pm. At 6:30 pm, we went down to the lobby to meet up with some of Camilla’s friends for a barbeque at one of Camilla friends’ mother in law’s house.

We got there and Thomas’s friends were there at the barbeque. Of course, I was a little bored with none of my friends there but I managed to still have a good time. We even saw a deer on the way back from the barbeque and it was standing still as there was a dog getting ready to chase it.

By the time, we came back to the lobby we were all tired.

Of course, I needed to find the restroom in the lobby. I actually had to ask Camilla to show me where it was.  After I was done, I went back to the lobby where Camilla was talking to her friends. It was about 2 hours that Camilla got done talking.

I got ready for bed and again I stayed up until my eyes couldn’t stay awake anymore. I messaged Macy before she went to sleep too. I went to sleep very excited about Sunday.

 

Selfie of me. Taken by me!

 

A selfie. Taken by me!

Flowers behind the hotel. Taken by me!

Flowers behind the hotel. Taken by me!

Rose Meadowsweet behind the hotel. Taken by me!

Roses in the back of the hotel. Taken by me!

Roses in the back of the hotel. Taken by me!

Roses in the back of the hotel. Taken by me!

Silverweed in the back of the hotel. Taken by me!

Roses in the back of the hotel. Taken by me!

Lilies in the back of the hotel. Taken by me!

Lilies in the back of the hotel. Taken by me!

Lilies in the back of the hotel. Taken by me!

Rose Meadowsweet in the back of the hotel. Taken by me!

Flower in the back of the hotel. Taken by me!

What’s your favorite flower? I would love to hear your answers if it feels right to you.

Click here for Part 4…

The Annual Chromosome 18 Conference 2019: Part 2

Hey, everyone! I just got back to Colorado Springs from the conference on July 27th. This blog post is a summary of what I did at the annual Chromosome 18p- conference this year. In case you are wondering, these are Thomas’s, Camilla’s, mine, and Chromosome 18’s website.

Here are some related blog posts: http://lilliandarnell.com/2018/07/06/annual-chromosome-18-conference-2018-part-1/http://lilliandarnell.com/2018/06/15/my-adventure-to-surprise-part-1/http://lilliandarnell.com/2017/09/13/annual-chromosome-18p-conference-2017/ I hope you enjoy!

July 19th: 

I woke up at 5:00 am once again with a renewed sense of excitement. So I quickly got ready to leave our hotel room in Provo, UT with the help of my mother, Camilla. Thomas took a bag to put ice in so Camilla could put ice into the icebox.

 

After he did that, he went down to the lobby to get some breakfast around 6:00 am. He came up to see how much longer until I and Camilla were ready after he got his food. Of course, we were almost ready. Camilla and I went down to get me a cup of water with a paper straw (I don’t like paper straws, unfortunately).

Then Camilla went up to grab the last round of stuff and I went up to make sure I got everything. We headed to the car at 7:00 am. I messaged Patty as soon as Camilla got the car running to let her know we were on our way again to Colorado Springs.

I messaged Macy (a very close 18p- friend of mine) throughout the second part of the trip as well. About 50 minutes of being on the road, we had to stop so I could go to the bathroom in Price, UT (Later, I learned that high altitude can cause you to go to the bathroom more).

Camilla decided to get some gas while there too. Then we were on our way again to Colorado. After that, we rode in the car. Eventually, I had posted in Lauren Martin (an 18p- friend of mine) and I’s the private group on Facebook that I was almost to Colorado.

A little while later, we made to Colorado (Yay!). I then posted a Facebook post saying I was in Colorado. Then I let Rebecca Parker (an 18p- friend), Macy, and Lauren know that I was in Colorado.

Shortly after, we arrived in Colorado we stopped in Grand Junction for gas, bathroom, and lunch. Then after Camilla ate lunch, we headed toward Glenwood Springs. After Glenwood Springs, we went into a huge traffic jam.

Unfortunately, the car overheated during the traffic jam. We had open our doors and windows to attempt to cool us down because Camilla and I both overheat in the hot heat.

A nice guy in a truck near us was able to give us a frozen water bottle to help. It wasn’t enough so we pulled off at a rest stop called White River National Forest. I went to the bathroom there (nasty! blech!). After I was done, we went back outside and found that the traffic jam had picked up a little speed. So Camilla and I took some quick photos before Camilla checked the car.

After she decided it was okay, we went back to the highway and this time we were on the side of the highway that we could pull over if we needed to. Luckily, we only stopped twice with the traffic jam and we were all so relieved that it was over.

So we continued until Denver. In Denver, there was bad traffic due to rush hour, construction, and car accidents slowing us down but at least we kept moving that time although slow.

Also, in Denver, I finished what was left of my trail mix.

After we left Denver, we were very close to Colorado Springs which expanded my excitement. I was so excited that I could barely contain my excitement and joy. Before I knew it, we arrived in Colorado Springs.

Once we stopped at the stoplight near the Colorado Springs Marriott, I took a good look around. Of course, there was construction across the road from where we were at the traffic light.

Then after the traffic light turned green, we started up a steep incline to the Marriott as it was upon a hill.  Along the way, we saw some adorable fawns. Unfortunately, I wasn’t able to get any photos of the fawns.

It was my very first time seeing deer up close. After we went up a slight 2nd incline, we were at the start of the parking lots. We went up 2 more steep inclines filled with parking lots.

Finally, we arrived at the entrance of the Colorado Springs Marriott after doing the last 2 inclines. Then Camilla had Thomas and I sit in the car while she checked us in. I didn’t think it was a good idea leaving me with Thomas especially when I needed to go to the restroom.

While I was sitting there waiting for Camilla to get back, I messaged Lauren in our Facebook group. Naturally, I didn’t get a response until later because they were out exploring Colorado Springs.

Thankfully, Camilla came back shortly after I sent that to Lauren. While I was waiting to go up to the room outside of the car, I messaged Macy to let her know I was at the Colorado Springs Marriott.

I messaged Rebecca to let her know I was at the Colorado Springs Marriott too. I also let Katie Baker (also known as Kaitlin; a very close 18p- friend of mine) that I was at the Colorado Springs Marriott too.

 

I also let her know the room number, just in case. I let Patty Romano (part of the Romano Duo) know that we arrived at the Marriott hotel too and I also let her know the room number.

There was an automatic revolving door, automatic wheel accessible door, and lastly a manual door. Naturally, I chose the manual door while Thomas and Camilla went through the revolving door.

I was surprised at how big and spacious the lobby was. We went straight up to our hotel room in the elevators. The elevators were Montgomery Vector hydraulic elevators (just in case anyone wanted to know).

Once we got inside, my nose got hit with a whiff of stink. I was shocked at how small the room was. Afterward, I went to the restroom. Camilla gave me my hotel room key. Then I went straight down to the lobby with Thomas and Camilla.

After that, I went back up to the room. I then took a look at the view. Camilla found the window opened a little bit. Of course, they had live music playing in the lobby so we could hear that through the open window.

The music stopped at 8:00 pm MDST. After Thomas, Camilla, and I had settled down some for about an hour or 2, we went down to get some dinner around 9:50 pm in the lobby.

Unfortunately, the restaurant was about to close but we were still able to order our dinner while sitting in the lobby. While I waited for my food, I checked to see if Lauren had responded to my Facebook post in our Facebook group saying that I had arrived at the Colorado Springs Marriott.

Sure enough, there was a comment from Lauren. Lauren said in her comment that she couldn’t wait to see me and that she was staying in a different hotel in Colorado Springs.

I also had repeated my first achievement of the trip while waiting for our food which was drinking water from a glass cup with a straw.

The food finally came at 11:00 pm. So after we ate, we headed up to the room on the elevator. We got ready for bed. I stayed up for a while though so I could relax.

Eventually, though, my eyes would barely stay open. So I quickly went to the restroom and finished getting ready for bed. Then I let myself fall asleep. I think it was around 1:00 am or 2:00 am when I fell asleep.  (I know, it was late.)

Me in the car on the way to Colorado Springs. Taken by me.

Visiting White River National Forest. Taken by me.

Visiting White River National Forest. Taken by me.

Visiting White River National Forest. Taken by me.

Visiting White River National Forest. Taken by me.

Visiting White River National Forest. Taken by me.

Rolling into Colorado Springs selfie. (Pun intended!) Taken by me, of course!

Selfie of me. Taken by me.

Selfie of me. Taken by me.

The view from our hotel room. Taken by me.

The view from our hotel room. Taken by me.

The view from our hotel room. Taken by me.

The view from our hotel room. Taken by me.

White River National Forest

Have you ever been to Colorado Springs? I would love to hear your answers in the comments if it feels right.

Click here for Part 3.

The Annual Chromosome Conference 2019: Part 1

Hey, everyone! I just got back to Colorado Springs from the conference on July 27th. This blog post is a summary of what I did at the annual Chromosome 18p- conference this year. In case you are wondering, these are Thomas’s, Camilla’s, mine, and Chromosome 18’s website.

Here are some related blog posts: http://lilliandarnell.com/2018/07/06/annual-chromosome-18-conference-2018-part-1/http://lilliandarnell.com/2018/06/15/my-adventure-to-surprise-part-1/http://lilliandarnell.com/2017/09/13/annual-chromosome-18p-conference-2017/ I hope you enjoy!

July 18th:

I woke up at 5:00 am but since my mother, Camilla bumped the start of the road trip to 7:00 am, I attempted to fall back to sleep.

But since I couldn’t sleep, I simply rested until 5:30am when Camilla came and got me. Then I got most of my last minute things to pack out of our bedroom.

Thomas woke up shortly after I did and used his supposedly 1 hour of free time to go to the restroom while I used mine to take a quick bath.

Afterwards, Camilla started packing up the car (we like to call her Rosie for her red color) which took approximately 2 hours.

Once we got in the car, Camilla went to our local Sprout’s grocery store to grab some ice packs for our 2 ice coolers.

Once Camilla was done, we were on our way to Colorado Springs. We went through Sparks, NV all way to Winnemucca where we stopped for gas and to go to the restroom.

At one point, we went through Battle Mountain. I also had some homemade trail mix at one point. The homemade trail mix had golden raisins, marshmallows, chocolate, cereal, graham crackers, honey sesame seed cashews, cashews, dried apricot, dried banana, banana chips, dried strawberry, and dried pineapple. I ate half of it.

After that, we went almost all the way through the border of Nevada/Utah but we stopped in Wells, NV to get our lunch from the back of the car, get gas, and go to the restroom.

After that, we kept going on the highway. We drove by Wendover and switched over to the Mountain Timezone (Yay!!).

Then shortly after, we started seeing the Salt Flats. Then about an hour afterward, we saw some small sections of The Great Salt Lake.

After some time, we saw the Great Lake. Then we went off the highway toward Salt Lake City heading toward Provo, Utah.

Although, we got stuck in some traffic jams & construction halfway through Salt Lake City. After we got through the accidents, we were almost to Provo, Utah. When we arrived in Provo, the hotel we stayed in was in view.

The hotel was Holiday Inn Provo River/Springville Area. So after we got some essential stuff we needed out of the car, we headed up to our hotel room. For a little bit, we settled down.

We eventually went to a nearby Denny’s for dinner. Once we got back, it was 2 hours later. Then I got ready for bed and went to sleep at 1:00 am.

I had decided to use one of the hotel pillows up under the pillow I brought from home and that was very comfortable.

I had messaged Macy who is a very close friend of mine throughout the first part of the road trip.

Me taking a picture of my shadow before the conference. Taken by me.

My painted toenails & its shadow. Taken by me.

Warming my feet up before starting the road trip and its shadow. Taken by me.

Toenails with my shadow. Taken by me.

My toenails decorated for the conference. Taken by me.

Me taking a selfie. Taken by me!

In Wells, NV at a gas station/rest stop for lunch. Taken by me!

Me on the way to Provo. Taken by me!

Me on the way to Provo, Utah.

Me in Provo for the night. Taken by me.

 

What’s your favorite trip you’ve ever been on? I would love to hear your answers if it feels right to you.

Click here for part 2…

Peaceful Summer

Hey, everyone! This is a poem I wrote for someone in Tasmania, Australia on June 7th, 2019. Here are some related blog posts; http://lilliandarnell.com/2019/06/15/how-the-sombrero-hat-came-to-be/,  http://lilliandarnell.com/2019/06/01/how-liana-and-summer-came-to-be-best-friends/, and http://lilliandarnell.com/2019/05/20/my-dream-story/. I hope you enjoy!

Stars shine bright

as diamonds in the sky.

Stars dance all night long

like a bird flapping its wings.

 

Stars wink at the Moon

like the ocean waves to the Sun.

The moon shines down

as silver in the night sky.

 

The moon brightens at the Sun

like gold glimmers in the sand.

The Sun glides gracefully

as a swan swimming.

 

The Sun blushes when the Ocean

shows the Sun’s reflection

as bright as sparkly snow.

The ocean gently whispers

Into my ear like a seashell. 

Sun

That’s the end of the poem. I hope you enjoyed! What’s your favorite summer thing? I would love to hear your answers!

How Liana And Summer Came To Be Best Friends

Hey, everyone! This story is in honor of National Donut Day which is June 1st and the upcoming summer months. Here are some related blog posts: http://lilliandarnell.com/2018/06/01/how-donuts-came-to-be/http://lilliandarnell.com/2018/06/12/the-hummingbird-fairy-wings/, and http://lilliandarnell.com/2018/06/15/my-adventure-to-surprise-part-1/. Anyway, I hope you enjoy!

One day, a donut named Liana was walking toward a building called Friendship Inc. and wondered if someone in this building would be her friend. Little did she know, a watermelon named Summer was running toward the Friendship Inc. building and wondering the same thing.

When Liana and Summer reached the entrance of Friendship Inc., they collided not seeing where they were going. When Liana finally stood back up, she said, “Oh, hello there. I didn’t see you there.”

Summer said, “No, I’m sorry. Let’s walk into Friendship Inc. together.” Liana solemnly agreed. Once Liana and Summer stepped into Friendship Inc., a staff member named Rose said, ‘Welcome to Friendship Inc.! How may I help with friendship?”

Liana said, “We are both looking for a friend.” Rose chuckled and said, “I see you’ve already found a to-be-friend. Come, follow me. We need to do some tests to make sure both of you are right for one another.”

Liana and Summer followed closely behind Rose. A few of the tests were seeing what Liana’s and Summer’s favorite things were. The other tests were personal like the age and gender.

Finally, after the tests Rose said, “Oh, just as I thought.” Liana and Summer both asked, “What is exactly as you thought?”. Rose explained, “Both of you are now best friends.” From that day on, the donut and the watermelon held hands and met up every day.

So now if you see a donut and a watermelon holding hands anywhere, that just might be Liana and Summer. That’s the end of the story. I hope you enjoyed!

What do you have planned for this summer? I would love to hear your answers if it feels right to you.

A picture of watermelons

Delicious Watermelons!!

 

Fundraising for the 2019 Chromosome 18 Family Conference – Poem Creativity


(This is our group photo from the 2018 Conference in Baltimore)

Hey, everyone! For this year’s fundraising efforts for my family to attend the Chromosome 18 Conference in Colorado Springs, I decided to make customized poems. Here’s some information on the poems:

The poems will be nature themed, fairy themed, mermaid themed, or unicorn themed. Every poem created will be different and uniquely yours! The poem will be made into a lovely graphic image and emailed to you.

Now, here’s some information on what the Chromosome 18 annual conference means to me:

The Chromosome 18 conference means a lot to me because I get to meet new friends and spend time with old friends. It also means a lot to me because I get to travel to a new city with my family.

Me with Rebecca

Macy and me.

The Chromosome 18 conference helps me get over my fears and my emotions. It helps me feel brave, courageous, and enjoyable. Here’s an example: In July 2017, when my family and I were inside the airport, I was fearful, nervous, tired, and afraid; yet, the view I got from the airplane was amazing and it was all worth it.

I want to check out the swimming pool and have fun with new and old friends. I also want to explore the city if the weather and temperature are good. I also want to check out new restaurants.

Here’s a poem as an example:

Butterflies dash and play
Within the golden sunbeams
Dancing in the afternoon sky.

Butterflies fly in the sky like a colorful moving rainbow
Glimmering in the sky.
The sky sparkling like water.

Butterflies dance freely along
the water.
Water sways as it’s greeting the butterflies.

©2019 Lillian Darnell

Use this PayPal link to enter your amount and note whether you would like nature themed, fairy themed, mermaid themed, or unicorn themed. If you would like the printed poem with a border using recycled materials, be sure to include an additional amount for shipping costs.

**You can still purchase prints of my abstract artwork also. Visit this page if interested in that option.**

Here are two poems I’ve recently written for supporters …

Annual Chromosome 18 Conference 2018 Part 7

Hey, everyone! I just got back from a trip to Baltimore for the annual Chromosome 18 conference. This blog post is a summary of what I did at the Chromosome 18p- conference this year. I hope you enjoy reading this blog post. In case you’re wondering, the links are Thomas’, Camilla’s, and Chromosome 18’s website.

Here are some similar blog posts: http://lilliandarnell.com/2018/06/15/my-adventure-to-surprise-part-1/ and http://lilliandarnell.com/2017/09/13/annual-chromosome-18p-conference-2017/. Anyway, I hope you enjoy!

July 5th: 

I woke up with my leg feeling sore from dancing hard the previous night. Anyway, I got dressed and ate breakfast and got ready to go for a walk around the Riverwalk. Camilla, Thomas, and I walked for about 30 minutes.

Afterward, we came back hot, hungry, and sweaty. So we ate lunch and eventually went down to the lobby. In the lobby, we waited until 3:50 pm for a Lyft driver to take us back to the airport.

At the airport, I was bored so I Facebook Messaged Macy while I was waiting to pre-board the plane with Camilla and Thomas. Right at 6:00 pm, we took off for McCarran International Airport.

During that flight, I wrote a story called A Brave Girl. (Click on the link to read the story). Anyway, I had Fritos, juice, and water on the flight. I also played games, read books, looked out the window, and took pictures.

On the way there, I saw tons of halos around the sun and a magnificent Nevada/Arizona sunset which was amazing welcoming us to Nevada. I walked around without holding Camilla’s hand.

I even went to the public restrooms all by myself.

Anyway, at 8:30 pm, we had plenty of time to wait so we took our time this time. When we finally sat down, I Facebook Messaged Patty and Macy letting them know we made it to Las Vegas.

At 11:00 pm, we preboarded the plane again. The plane was an old Southwest Airline plane. Once we took off, I was tired but didn’t go to sleep. Before I knew it, it was 11:50 pm and we were hovering over Reno.

At midnight, we got off the plane very tired. The airport was surprisingly very quiet and empty.

I even managed to walk through the whole airport without holding Camilla’s hand. Anyway, we made our way back to our car. Once we got some things unpacked, we all got ready for bed.

That is the end of our enjoyable adventure.

Gorgeous Flowers.

Pretty pink flowers.

Amazing flowers!

Along the riverwalk.

A Brave Girl

Hey, everyone! I wrote this story on July 5th inspired by a daydream I had for a year. The character’s name is based on Macy Miller (a close 18p- friend of mine). I hope you enjoy!

Once long ago, there lived a young girl named Macy Helens who was afraid to fly on an airplane. One day though, her parents who were named Hannah and William announced that they were going on a family vacation but they needed to take an airplane to their destination.

Hannah had made a smart decision to use this vacation to help Macy get over her fears of flying. So Macy was scared but she knew she had to overcome her fears eventually. So Macy agreed to go. They left the next morning.

First, they went through TFA (The Fairy Association which is similar to TSA) and Macy wasn’t even scared but she was proud of herself. Macy handled the searching for a gate number, waiting, and the walking quite easily. The hardest thing was getting on the plane but she told herself not to look down.

It worked perfectly. Once they were about to take off, Macy was afraid of the steep incline that what she did was look out the window for familiar sights. Macy saw circular rainbows, a beautiful sunset, and a gorgeous sunrise as well. She was very impressed. Finally, their flight landed and Macy was very happy and proud.

Rainbow around the sun