The Annual Chromosome 18 Conference 2019: Part 7

Hey, everyone! I just got back to Colorado Springs from the conference on July 27th. This blog post is a summary of what I did at the annual Chromosome 18p- conference this year. In case you are wondering, these are Thomas’s, Camilla’s, mine, and Chromosome 18’s website.

Here are some related blog posts: I hope you enjoy!

July 24th: 

I woke up at 11:00am. I then dressed and I ate a little food. I went swimming for about 10 minutes and hung out with Lauren. After that, I took a shower so it wasn’t in my way later.

While I was drying off, I messaged Macy and I decided to put on my red shirt so Macy and I could match. Then I went down to the lobby and sat down to wait when I realized I had forgotten my iPhone charger and I figured I would get it when I went up to get my headphones.

In the next minute, Macy and Lauren found me and so I told her and asked if she and Lauren wanted to come with me. They said yes and we also made a stop by Lauren’s hotel room so she could grab her phone plugin.

After we went down together to sit on the lobby floor next to the same plugin outlet. I then watched a little bit more of the video before pictures. I went to the restrooms quickly then I went with Lauren and Macy outside. I handed Camilla my bag so she could put it somewhere.

I sat down on the grass gently pulling my skirt around my knees so I wouldn’t have the grass tickling me. I smiled for the cameras and for the first photo we all waved. Then the other photos we smiled.

Once the photos were all taken, Patty and Frank came down to talk to me. And since, Lauren was with me and Macy I introduced Lauren to them.

After they left, I headed up to the room while Macy and Lauren went to get dressed. I got dressed and Camilla did my hair. Macy came in right before Camilla did my hair.

Once my hair was done, Macy and I headed to the elevators to wait for Lauren to come down with the elevator.

Once we went to the lobby, we went to the lobby’s public restroom. While I was waiting for Macy to finish, I messaged Camilla to ask when she would come down and when we should head into the ballroom.

We eventually headed toward the ballroom. We ran into Patty (aka Romano Duo), Frank, and Debbie on the way there. We headed into the ballroom at one point. Macy, Lauren, and I sat down at a makeshift self-advocates table.

We waited for food and just like always I was the last one to eat. What I had was french fries although there was pork with it. After I had some rich chocolate cake, I headed toward the dance floor.

Debbie joined me then Rebecca joined us and Lauren and Macy came back from the restroom to join us then Patty Camilla, and Frank joined us. A little later I went to the restroom.

To my surprise while I was drying my hands, I saw Macy holding the door waiting to go to the restroom. Once I was done I left the restroom, I found our dance group in the ballroom and shortly afterwards Katie came to ask if I wanted my picture taken with her.

This time I said yes so I went and then once I was done I headed back. Then Katie (It was great to see you again! See you next year!) asked Lauren. Afterward, we continued to dance until the end of the dance with a few photos taken.

One by one people began to leave, In the end, I went with Macy and Lauren. Once Macy and I got on our hotel floor, we said goodbye to Lauren (I had a fun time with you and it was fun dancing with you! See you next year!) to head up to her 8th-floor room.

I headed back down for a minute so I could say bye to Rebecca (It was great to see you and I had fun dancing with you! See you next year!) then headed up in time so Macy (I’m glad I got to spend time with you although I was sick. See you next year!) could say bye to me. Then I got ready for bed. Once I finished getting ready for bed, I got into bed and used my phone until my eyes were starting to close.

During that time I was thinking how much I would miss Macy and Lauren. Anyway, I got up to finish up getting ready for bed then I fell asleep. I went to sleep happy.

Me with Lauren and Macy.  –  Taken by Macy’s parents and Lauren’s mother

Me with Lauren.  –  Taken by Lauren’s mother

Macy, Lauren, and me. – Taken by Camilla

Macy, me, and Lauren. – Taken by Camilla

Me, Lauren, Macy, Rebecca, and two other people at the conference. – Taken by a friend of mine.

Me, Macy, Rebecca, and Lauren.

Me, Macy, and Lauren.

Me dancing with Lauren, Macy, and Rebecca.

Kaitlyn, Katie, Lauren, and me. – Taken by Katie’s mother.

Macy, Lauren, Rebecca, me, and Frank.

Lauren, Macy, and me. – Taken by Lauren’s mother.

Me, Macy, and Lauren at a self-advocate table. – Taken by Lauren’s mother

Me, Macy, Lauren, Rebecca, and Frank

Me and Hannah. – Taken by Camilla

Kaitlyn, Katie, Lauren, and me. – Taken by Katie’s mother.

Macy, Lauren, Rebecca, me, and Frank.

Debbie, Lauren, and me.

Me, Macy, Lauren, Rebecca, Frank, and Macy’s sister.

Me, Macy, and Frank.

Me, Macy, and Lauren. – Taken by Lauren’s mother.

Rebecca, Frank, Macy, me, Debbie, Camilla, Lauren, and Patty.

Dinner at Self Advocate Table

Lauren, Macy, and me.

Rebecca, Macy, me, Lauren, Frank, Camilla, Thomas, and Patty.

What’s your favorite song? I would love to hear your answers if it feels right to you!

Click here for Part 8…

Annual Chromosome 18 Conference 2018 Part 5

Hey, everyone! I just got back from a trip to Baltimore for the annual Chromosome 18 conference. This blog post is a summary of what I did at the Chromosome 18p- conference this year. I hope you enjoy reading this blog post. In case you’re wondering, the links are Thomas’, Camilla’s, and Chromosome 18’s website.

Here are some similar blog posts: and Anyway, I hope you enjoy!

July 3rd: 

I woke up at 8:25 am. Again Camilla called room service so she could order breakfast shortly after I woke up. At 9:23 am, Macy was outside my hotel room. Anyway, I let her in and I had already started getting ready to go down to the 5th floor.

So I finished getting ready quickly. Instead of going to the 5th floor though, we explored the hotel floors again. Eventually, Macy and I went into her hotel room and we hung out in her room there.

We sang a couple of songs from Youtube (luckily my throat wasn’t dry) before deciding to go down to the 5th floor. At 11:30 am, I went with Macy and Katie to listen to the pre-self-advocate panel in a certain room.

The pre-self-advocate-advocate panel was finished at 11:45 am for lunch. Macy’s parents weren’t out of a session yet so she asked if she could sit with me for lunch. I was perfectly fine with that.

I ate most of my lunch while waiting for Macy to get her water. I ate my dessert while waiting for Macy to get her dessert. After we both finished eating lunch, we went back up to Macy’s hotel room for a few minutes before heading back down to the 5th floor.

Macy and I hung out with Katie, Kaylyn Earl (an 18p- friend), Rebecca, Irene Mckay (an 18p- friend I’ve known), and Remy before my friends had to go to the certain room. Also, Macy and I got our photo taken as well. At 2:15 pm, Macy came out to take a break and I hung out before Macy and Rebecca had to go back to the certain room.

I went up to the room again until 3:00 pm when I went back down to the 5th floor. At 3:10 pm, Macy came out and we hung around the 5th-floor talking and giggling (or laughing, whichever you want to call it).

At 5:00 pm, I went down to the lobby with Macy to see Macy off for Self Advocate Dinner (didn’t go since it wasn’t my type of food). At 7:28 pm, Macy messaged me through Facebook Messenger saying she was on the 5th floor.

So I headed back down to the 5th floor right away. After that, we went up to my hotel room to hang out and talk until 9:50 pm. I decided to go down with her to right outside her hotel room and then I went up alone thinking and daydreaming (at night while awake).

Then I got ready for bed and went to sleep late that night wondering what would happen tomorrow. I was excited that the next day was the 4th of July. I went to sleep happy but tired.

Me and My friends

See part 6 here