The Annual Chromosome 18 Conference 2019: Part 6

Hey, everyone! I just got back to Colorado Springs from the conference on July 27th. This blog post is a summary of what I did at the annual Chromosome 18p- conference this year. In case you are wondering, these are Thomas’s, Camilla’s, mine, and Chromosome 18’s website.

Here are some related blog posts: http://lilliandarnell.com/2018/07/06/annual-chromosome-18-conference-2018-part-1/http://lilliandarnell.com/2018/06/15/my-adventure-to-surprise-part-1/http://lilliandarnell.com/2017/09/13/annual-chromosome-18p-conference-2017/ I hope you enjoy!

July 23rd: 

I woke up at 9:39 am. I then looked at my phone to see if there were any messages from Macy and sure enough there was. Eventually, Macy asked where I was and I told her I was up in the hotel room eating.

Then around noon, Macy went to her hotel room to eat lunch. Then about 9 minutes later she asked where I was again. I told her that I was still in the room but I told her that I was dressed.

So she told me that she was on her way to our hotel room. Then 2 minutes later, she was at the door. So I walked over to the door to open it. So we hung out in the hotel room for a little bit before heading to her hotel room.

During that time, Macy went to the restroom there. Once she was done drying her hands, she asked Siri what the weather was in Kentucky. After she got the answer to the weather, Macy asked what time it was in Kentucky.

Then she told Siiri to type a message to me saying we were in the same room together. After she sat down for a minute, we roamed the hallways and as we approached the 6th floor I asked if she wanted to see Patty, Frank, and Debbie’s hotel room.

She said sure so we did. Once we got to the door I pulled out the room key and looked at the room number to make sure it was the right door. Then I opened the door to show her what their room looked like.

I let her see the view then I closed the white curtains again gently. After that, we went to the 4th floor again. So we could ask Camilla about the pool. We went on a mission to find the age limit of going in the pool by ourselves.

Macy and I went outside and looked on the sign on the gate but to our surprise, there was no age limit on the sign. We went back to Camilla to tell her and she suggested we go look at the sign outside of the pool on the second floor.

So we went to the second floor to look at the sign and sure enough, the age limit existed. The age limit was 14 and under. So we went back to Camilla and told her. She told us to double-check with the hotel staff in the lobby.

So we went back down to the lobby to ask. The staff said it was okay for both of us. We headed back up to our hotel room. Camilla said good but she pointed out the pool had people in it.

We waited until 3:00 pm. At 3:00 pm, people started coming back from the zoo. In about 15 minutes, we got in the pool. I kept an eye on the time too to make sure it wasn’t 10 minutes yet.

When there were about 3 minutes left, Camilla came in the pool and I told her to let me know when 10 minutes were up. When the 10 minutes were up, Camilla helped me and Macy find a spot in the shade to dry off.

Once we dried off, we headed out of the pool gate and down the steps where we ran into the rest of Macy’s family. I followed them right into the elevator and managed to get a spot next to the elevator buttons so I could press the 4th-floor button.

Once Macy and I got off the elevators, we went in opposite directions so Macy could take a shower and so I could get dressed. While I went to the restroom, I Facebook Messaged Patty to talk to her about getting the presents Patty got us from exploring The Garden of the Gods and Pikes Peak.

Eventually, I began figuring out what to put on. I finally decided upon black baggy pants that are very comfortable with the shirt I wore before going to the pool. At 4:00 pm, I arrived at their hotel room on the 6th floor.

I sat down to hang out and before I left, they handed me a bag that said Garden of The Gods and Pikes Peak while Camilla got some ‘replacement’ earrings while Thomas got a dream catcher.

At around 4:30 pm, I found Macy in the elevator room on the 4th floor waiting for me so I quickly changed my pants into my blue skirt. Then I went down only to realize I forgot my sunglasses and my little white cape so I went up quickly to grab them.

Once I came to the elevator room, the elevator that came was crowded but there was just enough space for me to squeeze in (being small has its advantages). In the elevator, among the crowd was Katie and her father who were heading down to the lobby as well.

At around 5:00 pm,  I saw this party/tour bus we were getting on. I could hardly believe my eyes. The music I must say was interesting.  Camilla went inside the bus to get photos of the party bus full of self-advocates like me, Macy, and Lauren.

Camilla danced to the music which was very funny. Once she left, we started riding with no seatbelts which were awesome! All the bumps made me feel like I was dancing. Macy said that she was not expecting seatbelts but she liked it like me.

Too soon though, we arrived at the restaurant called Front Range Barbqeucue and again I had another friend hold it while I got off. Once I got off, I followed Macy and the other self-advocates to the entrance of Front Range Barbqeucue.

Then we turned left and I saw three steps with no railing but I looked around and found a temporary railing. Macy went first, I went second, and Lauren went last.

While I was going down the steps, I looked down to ensure that my feet were stepping in the right place. Once I was down, I walked into the room that the self-advocates would be in.

Macy, Lauren, and I all found a spot to sit down together at. I got some water and a straw so I could drink that water instead of my thermos water. Unfortunately, when I was about to message Camilla my phone went dead so I had no way of knowing the time.

Shortly after that, the food was ready and I went to at least get two things of food. Chicken and a muffin. I knew I might not be able to eat both so I chose to eat the meat. Although, immediately I regretted my decision. I immediately wished that I had chosen to eat the blueberry muffin.

After I ate,  my stomach was grumbling, gurgling, and unsettled. So I just rubbed my stomach and drink water in hopes that would settle my stomach. My stomach took it a while but eventually, it settled down some.

I was wondering about the time. I was practically talking to myself about it but Macy heard me and showed me the time on her phone. (Thank you for that, Macy!) It was almost 8:00 pm.

Soon it was time to go so I went outside and went back up the steps using the temporary railing. I found Katie and she helped me get to Macy and Lauren. We got to the party tour bus and this time my hair was blowing around due to a window open behind me.

We saw the sunset on us while on the bus. It was a magnificent sunset. I really wished I could have taken a picture of it. Macy showed me the time again on the bus. Macy and Lauren’s mothers’ all went to get tattoos and Macy asked me if I wanted to hang out with them while they waited.

Then all too soon, we were back at the hotel. We walked back inside together.  And so the waiting began starting with a stop at the restroom for all three of us. Once we were done, Macy’s father asked about us having fun in the bathroom through text message.

We burst out laughing. Once we stopped laughing, we headed into the lobby and I sat with them for a while. When they were on their phones, I went to scout out a plugin outlet but couldn’t find one.

Eventually, Camilla came by and helped me find a spot for my phone and I eventually went over once it was on and messaged Macy through it. Then Macy and Lauren went up to grab their iPhone plugin cords.

I decided to go up with them so I grabbed my phone plugin and went up with them. Once Macy and Lauren got their plugins, we all found a perfect spot for our plugins that weren’t being used. So we plugged up our phones and sat down together on the floor,

Camilla stopped by to take pictures of us and I also asked for a cup of water as I already drank all my water. We sat there until almost midnight. We had a great time together.

Macy set up this group text with Lauren and I because she figured it would be easy to message us through. (Awesome idea, Macy!) I also dropped Macy off while Lauren continued on the elevator alone. I got ready for bed and then I used my phone until my eyes wouldn’t stay open.

So I got up and finished getting ready for bed. Then I went to sleep at about 3:00 am. (Yes, I know it was late but I was having fun on my phone and didn’t see the time until it was too late.)

Me, Macy, and Lauren hanging out aka Starfish Triplets! Taken by me!

Me, Macy, and Lauren.
Taken by Macy!

The Starfish Triplets aka me, Macy, and Lauren on a party tour bus! Taken by Camilla.

Self Advocates on the Party Bus! Taken by Camilla.

What do you like to do with your friends? I would love to hear your answers in the comments if it feels right to you!

Part 7 will be here soon… Stay tuned!!

The Annual Chromosome Conference 2019: Part 1

Hey, everyone! I just got back to Colorado Springs from the conference on July 27th. This blog post is a summary of what I did at the annual Chromosome 18p- conference this year. In case you are wondering, these are Thomas’s, Camilla’s, mine, and Chromosome 18’s website.

Here are some related blog posts: http://lilliandarnell.com/2018/07/06/annual-chromosome-18-conference-2018-part-1/http://lilliandarnell.com/2018/06/15/my-adventure-to-surprise-part-1/http://lilliandarnell.com/2017/09/13/annual-chromosome-18p-conference-2017/ I hope you enjoy!

July 18th:

I woke up at 5:00 am but since my mother, Camilla bumped the start of the road trip to 7:00 am, I attempted to fall back to sleep.

But since I couldn’t sleep, I simply rested until 5:30am when Camilla came and got me. Then I got most of my last minute things to pack out of our bedroom.

Thomas woke up shortly after I did and used his supposedly 1 hour of free time to go to the restroom while I used mine to take a quick bath.

Afterwards, Camilla started packing up the car (we like to call her Rosie for her red color) which took approximately 2 hours.

Once we got in the car, Camilla went to our local Sprout’s grocery store to grab some ice packs for our 2 ice coolers.

Once Camilla was done, we were on our way to Colorado Springs. We went through Sparks, NV all way to Winnemucca where we stopped for gas and to go to the restroom.

At one point, we went through Battle Mountain. I also had some homemade trail mix at one point. The homemade trail mix had golden raisins, marshmallows, chocolate, cereal, graham crackers, honey sesame seed cashews, cashews, dried apricot, dried banana, banana chips, dried strawberry, and dried pineapple. I ate half of it.

After that, we went almost all the way through the border of Nevada/Utah but we stopped in Wells, NV to get our lunch from the back of the car, get gas, and go to the restroom.

After that, we kept going on the highway. We drove by Wendover and switched over to the Mountain Timezone (Yay!!).

Then shortly after, we started seeing the Salt Flats. Then about an hour afterward, we saw some small sections of The Great Salt Lake.

After some time, we saw the Great Lake. Then we went off the highway toward Salt Lake City heading toward Provo, Utah.

Although, we got stuck in some traffic jams & construction halfway through Salt Lake City. After we got through the accidents, we were almost to Provo, Utah. When we arrived in Provo, the hotel we stayed in was in view.

The hotel was Holiday Inn Provo River/Springville Area. So after we got some essential stuff we needed out of the car, we headed up to our hotel room. For a little bit, we settled down.

We eventually went to a nearby Denny’s for dinner. Once we got back, it was 2 hours later. Then I got ready for bed and went to sleep at 1:00 am.

I had decided to use one of the hotel pillows up under the pillow I brought from home and that was very comfortable.

I had messaged Macy who is a very close friend of mine throughout the first part of the road trip.

Me taking a picture of my shadow before the conference. Taken by me.

My painted toenails & its shadow. Taken by me.

Warming my feet up before starting the road trip and its shadow. Taken by me.

Toenails with my shadow. Taken by me.

My toenails decorated for the conference. Taken by me.

Me taking a selfie. Taken by me!

In Wells, NV at a gas station/rest stop for lunch. Taken by me!

Me on the way to Provo. Taken by me!

Me on the way to Provo, Utah.

Me in Provo for the night. Taken by me.

 

What’s your favorite trip you’ve ever been on? I would love to hear your answers if it feels right to you.

Click here for part 2…

How Macy And I Met

Hey, everyone! I had a fun idea to write a fictionalized version of how Macy and I met. The main character’s name is based off of Macy Miller (a close 18p- friend of mine). Here’s a few related blog posts: http://lilliandarnell.com/2018/07/06/annual-chromosome-18-conference-2018-part-1/, http://lilliandarnell.com/2018/06/15/my-adventure-to-surprise-part-1/, and http://lilliandarnell.com/2018/07/09/a-brave-girl/. I hope you enjoy!

Back in July 2016, Macy’s mother Rose commented asking if Macy Helens and I could connect on Facebook on Rebecca (a 18p- friend of mine)’s Facebook post and my mother Camilla Downs asked me if I wanted to connect with Macy Helens before replying to Rose’s comment.

Naturally, I said yes as I was curious and eager to have a 3rd 18p- person to talk to. So I searched up ‘Macy Helens’ and sure enough I found it.

After I clicked follow, I waited for at least 1 or 2 weeks until I Facebook Messaged Macy using Messenger. And 10 minutes later, I got a reply saying Hi.

Then I asked her a few questions to get to know her. I asked, “What’s your favorite song?” at one point. Macy Helens replied, “Let It Go”. I replied, “My favorite song is Let It Go”. And after that I knew we’d be friends.

I also came know that Macy Helens was the same age as me. One year later, Camilla told me they were going to the Annual Chromosome 18 conference and I was ecstatic but I was nervous too since I didn’t know what to expect.

But when the big day came, Macy Helens and I were very shy but as we laughed shyly our shyness slowly drifted away.

We were giggling and laughing more confidently. By the end of the conference, we had become fast friends.

That’s the end of the story. I hope you enjoyed!

Fundraising for the 2018 Chromosome 18 Family Conference – Rainbow Balloon

Hey, everyone! Remember in previous years when I sold prints or copies of my art? I have interesting news!

I’ve decided to sell prints or copies of Rainbow Balloon to fundraise and help my family attend the annual Chromosome 18 conference. The print will be about an 8 X 10 size and mounted on foam board or similar ready to hang.

The Chromosome 18 conference helps me get over my fears and my emotions. It helps me feel brave, courageous, and enjoyable. Here’s an example: Last year in July when my family and I were inside the airport, I was fearful, nervous, tired, and afraid; yet, the view I got from the airplane was amazing and it was all worth it.

The really fun part is that YOU get to choose your own price! The base price is $15 – $25 to cover cost of printing, mounting, and shipping (US Only – Our overseas friends can email my mom at Camilla Downs @ gmail.com if you’re interested in purchasing a print).

Use this Paypal link and enter your own amount over the $25 base price. For example, if you want to donate $50 towards my fundraiser, then you would enter $75. Go here.

OR …. If you simply want a photo quality print (minus the mounting), the base price is $15 to cover cost of printing and shipping. For example, if you wish to donate $25 to my fundraiser, then you would enter $40. Use this Paypal link. (Please note whether you want “Just the Print” or “Mounted Print” and the Name of the print you are buying)

The Chromosome 18 conference means a lot to me because I get to meet new friends and spend time with old friends. It also means a lot to me because I get to travel to a new city with my family.

I want to check out the swimming pool and have fun with new and old friends. I also want to explore the city if the weather and temperature are good. I also want to check out new restaurants.

Please visit this link to see a summary of all the drawings being offered. Thank you! http://lilliandarnell.com/2018/06/06/fundraising-for-the-2018-chromosome-18-family-conference-in-summary/

Here’s a story inspired by Rainbow Balloon:

Once many years ago, there lived a smart unicorn who longed to travel the world. The unicorn was named Rainbow. So one day, Rainbow found some harmless fire and Rainbow found some rainbow paint, rope, a small piece of metal, a basket, and plastic.

Rainbow also managed to find a picture of what Rainbow wanted to build. So Rainbow set to work on making the thing in the picture. First, Rainbow used the plastic since she already had a mold to work with.

Second, Rainbow used the rainbow paint to make the thing look outstanding. Third, Rainbow used the rope to connect the basket to the first part of the thing. Last, Rainbow attached the brake (metal) and fuel (fire).

Now Rainbow needed a name for the thing. “Why not just name it after me?”, thought Rainbow. So she figured to call her project Rainbow Balloon. So Rainbow traveled all over the world at last.

So if you see Rainbow the unicorn and her balloon, wave and she just might wave back with her hoof.

Here’s a story inspired by how I feel about attending the Chromosome 18 Conference:

Once many years, a little girl named Rainbow loved traveling to new places. One day, Rainbow decided to write a story. “Hello! My name is Rainbow. My family and I have been going to a conference called Party Dancers for many years”, wrote Rainbow.

One day at the Party Dancers, she faced many fears in just 1 day. Rainbow was very determined to conquer more fears. A couple of years later at the Party Dancers, Rainbow met a friend she connected with through Bookworm the previous year and had so much fun. Rainbow knew many friends and people that year.

Rainbow even tried to get in the cold pool. This year, Rainbow was pumped to go to the Party Dancers again since she found out most of her friends would be at the Party Dancers. Rainbow traveled to Sugary Land for the Party Dancers.

Again, Rainbow met the same friend again and chatted and had fun. Now, Rainbow was pumped to go to the next Party Dancers conference. Rainbow finished her story and sent it off to the publisher.

The publisher was very impressed. Many years past and Rainbow’s story was now a best seller book.

That’s the end of the 2nd story.

Fundraising for the 2018 Chromosome 18 Family Conference – In Summary

Hey, everyone! I have exciting news!

I’ve decided to sell prints or copies of the my artwork to fundraise and help my family attend the annual Chromosome 18 conference. The print will be about an 8 X 10 size or smaller (depending on which print) and mounted on foam board or similar ready to hang.

The Chromosome 18 conference helps me get over my fears and my emotions. It helps me feel brave, courageous, and enjoyable. Here’s an example: Last year in July when my family and I were inside the airport, I was fearful, nervous, tired, and afraid; yet, the view I got from the airplane was amazing and it was all worth it.

The really fun part is that YOU get to choose your own price! The base price is of $15 – $25 to cover cost of printing, mounting, and shipping (US Only – Our overseas friends can email my mom at Camilla Downs @ gmail.com if you’re interested in purchasing a print).

Use this Paypal link and enter your own amount over the $25 base price. For example, if you want to donate $50 towards my fundraiser, then you would enter $75. Go here.

OR …. If you simply want a photo quality print (minus the mounting), the base price is $15 to cover cost of printing and shipping. For example, if you wish to donate $25 to my fundraiser, then you would enter $40. Use this Paypal link. (Please note whether you want “Just the Print” or “Mounted Print”)

Here are your choices:

1.) The Egyptian Eye

2.) Rainbow of Emotions

3.) Rainbow Mandala

4.) Happy World

5.) Hot Air Balloon

Use this Paypal link and enter your own amount over the $25 base price. For example, if you want to donate $50 towards my fundraiser, then you would enter $75. Go here.

(Please note which print you would like to have and whether you want “Just the Print” or “Mounted Print”)

OR …. If you simply want a photo quality print (minus the mounting), the base price is $15 to cover cost of printing and shipping. For example, if you wish to donate $25 to my fundraiser, then you would enter $40. Use this Paypal link.

(Please note which print you would like to have and whether you want “Just the Print” or “Mounted Print”)

 

Fundraising for the 2018 Chromosome 18 Family Conference – Happy World

Hey, everyone! Remember in previous years when I sold prints or copies of my art? I have exciting news!

I’ve decided to sell prints or copies of Happy World to fundraise and help my family attend the annual Chromosome 18 conference. The print will be about an 8 X 10 size and mounted on foam board or similar ready to hang.

The Chromosome 18 conference helps me get over my fears and my emotions. It helps me feel brave, courageous, and enjoyable. Here’s an example: Last year in July when my family and I were inside the airport, I was fearful, nervous, tired, and afraid; yet, the view I got from the airplane was amazing and it was all worth it.

The really fun part is that YOU get to choose your own price! The base price is $15 – $25 to cover cost of printing, mounting, and shipping (US Only – Our overseas friends can email my mom at Camilla Downs @ gmail.com if you’re interested in purchasing a print).

Use this Paypal link and enter your own amount over the $25 base price. For example, if you want to donate $50 towards my fundraiser, then you would enter $75. Go here.

OR …. If you simply want a photo quality print (minus the mounting), the base price is $15 to cover cost of printing and shipping. For example, if you wish to donate $25 to my fundraiser, then you would enter $40. Use this Paypal link. (Please note whether you want “Just the Print” or “Mounted Print” and the Name of the print you are buying)

The Chromosome 18 conference means a lot to me because I get to meet new friends and spend time with old friends. It also means a lot to me because I get to travel to a new city with my family.

I want to check out the swimming pool and have fun with new and old friends. I also want to explore the city if the weather and temperature are good. I also want to check out new restaurants.

Please visit this link to see a summary of all the drawings being offered. Thank you! http://lilliandarnell.com/2018/06/06/fundraising-for-the-2018-chromosome-18-family-conference-in-summary/

Here’s a story I wrote about the Happy World from June 2016:

Happy World

One day, a bird picked up a seed to eat. A few minutes later, the bird decided that it wasn’t the right seed. The bird threw it back down. That was the beginning of the Happy World.

As the years past, the tree grew until it had several branches and a strong trunk. The strong tree became known as the Happy Tree. The Happy Tree decided to produce a seed. The seed grew with happiness and love. One day, the seed blossomed into a young beautiful tree that didn’t grow much after that point.

The young tree became known as the Amazing Beauty Tree. The Amazing Beauty Tree saw the Happy Tree. Suddenly, she realized that she wanted to know who produced her. She asked the Happy Tree if it was him who planted her. He said yes and Amazing Beauty wanted to produce a seed of her own.

She let the bird fly the seed to the Happy World. The seed became a thin beautiful conifer tree. The tree produced identical seeds until there was almost no room to plant seeds. After that the trees started planting grass seeds. After the grass had grown, there was no room to plant seeds.

A few years later, the several earthquakes that would become the mountains shook the world. The trees, birds, and grass survived. They noticed something different about the landscape and they saw triangular tall figures. They soon realized that they had saw a mountain. About the same time, their roots filled with water and animals.

One year later, humans discovered the Happy World and decided to make a small town out of it. They also made cars, rockets, and kites. The sun, clouds, rain, hail, snow, and thunderstorms were always there but they were nicer than outside of the Happy World. Everyone lived happily. If you go into a forest, you will realize that the Happy World is the forest.

Here’s a 2nd story inspired by The Happy World (the sequel of The Happy World):

Savannah and Her Friends

Once long ago, there lived a bird named Savannah who loved her forest. Savannah liked to call the forest The Happy World. One day, she flew into her friend (known as the Happy Tree).

The Happy Tree was very wise and loved it’s home as well. When the Happy Tree saw Savannah coming, the Happy Tree said, “Hey there, Savannah! I haven’t seen you in a while.” Savannah said with a laugh, “Hey, Happy Tree! I know. I’ve been making sure everything has been okay in the forest.”

“I know, I’ve seen you fly overhead.”, said the Happy Tree. “Oh, look at the time. I got to fly. Bye, Happy Tree!”, said Savannah. “Ok. Bye, Savannah!”, said the Happy Tree and waved with one of his leafy branches.

Savannah continued and noticed her friends. So she landed and said, “Hello! I saw you all down here and thought I would stop by to say Hello.” Her friends said, “Hey, Savannah! We knew you would like always.”

Savannah said, “Sorry, I’ve got to go now. I’m so tired that I feel like collapsing. ” Her friends said, “Ok, we know just how you feel. Bye!”. So if you see a bird flying, that may be Savannah or one of her friends.

That’s the end of the story.

Here’s a story inspired by how I feel about attending the Chromosome 18 Conference:

Once many years, a little girl named Rainbow loved traveling to new places. One day, Rainbow decided to write a story. “Hello! My name is Rainbow. My family and I have been going to a conference called Party Dancers for many years”, wrote Rainbow.

One day at the Party Dancers, she faced many fears in just 1 day. Rainbow was very determined to conquer more fears. A couple of years later at the Party Dancers, Rainbow met a friend she connected with through Bookworm the previous year and had so much fun. Rainbow knew many friends and people that year.

Rainbow even tried to get in the cold pool. This year, Rainbow was pumped to go to the Party Dancers again since she found out most of her friends would be at the Party Dancers. Rainbow traveled to Sugary Land for the Party Dancers.

Again, Rainbow met the same friend again and chatted and had fun. Now, Rainbow was pumped to go to the next Party Dancers conference. Rainbow finished her story and sent it off to the publisher.

The publisher was very impressed. Many years past and Rainbow’s story was now a best seller book.

That’s the end of the 2nd story.

Fundraising for the 2018 Chromosome 18 Family Conference – Rainbow Mandala

Hey, everyone! Remember in previous years when I sold prints or copies of my abstract art? I have exciting news!

I’ve decided to sell prints or copies of the Rainbow Mandala to fundraise and help my family attend the annual Chromosome 18 conference. The print will be about an 8 X 10 size and mounted on foam board or similar ready to hang.

The Chromosome 18 conference helps me get over my fears and my emotions. It helps me feel brave, courageous, and enjoyable. Here’s an example: Last year in July when my family and I were inside the airport, I was fearful, nervous, tired, and afraid; yet, the view I got from the airplane was amazing and it was all worth it.

The really fun part is that YOU get to choose your own price! The base price is $15 – $25 to cover cost of printing, mounting, and shipping (US Only – Our overseas friends can email my mom at Camilla Downs @ gmail.com if you’re interested in purchasing a print).

Use this Paypal link and enter your own amount over the $25 base price. For example, if you want to donate $50 towards my fundraiser, then you would enter $75. Go here.

OR …. If you simply want a photo quality print (minus the mounting), the base price is $15 to cover cost of printing and shipping. For example, if you wish to donate $25 to my fundraiser, then you would enter $40. Use this Paypal link. (Please note whether you want “Just the Print” or “Mounted Print” and the Name of the print you are buying)

The Chromosome 18 conference means a lot to me because I get to meet new friends and spend time with old friends. It also means a lot to me because I get to travel to a new city with my family.

I want to check out the swimming pool and have fun with new and old friends. I also want to explore the city if the weather and temperature are good. I also want to check out new restaurants.

Please visit this link to see a summary of all the drawings being offered. Thank you! http://lilliandarnell.com/2018/06/06/fundraising-for-the-2018-chromosome-18-family-conference-in-summary/

Here’s a story inspired by Rainbow Mandala:

Once there lived a mandala artist named Artistique (Artistique’s nickname was Elsa) who loved to draw on her mandala pad. One day, her friend who was named Paintaroo (nicknamed Angel) said, “Hey, Elsa! What are you doing?”.

“Hey, Angel! I’m drawing a new mandala on my mandala pad”, said Elsa with a big smile on her face. “Wow, that’s awesome!”, exclaimed Angel. “Angel, would you like to help me with my biggest wall mandala painting?”, asked Elsa with a laugh.

“Elsa, I’m honored. Yes, I’ll help you especially since you are my friend and because I’m a good painter.”, says Angel with a big smile. “I’m happy to hear you say that, Angel! You are my best friend.”, squealed Elsa with excitement and hugged Angel.

So Elsa and Angel picked out two colors and started painting the background colors which were  black and navy blue. After Elsa and Angel finished painting the background colors, they started discussing shapes and other designs for the inside of the mandala.

Elsa and Angel agreed on swirls and triangles but they also agreed to paint whatever design or shape they wanted. Elsa and Angel went back to painting and decided to stop in the middle of the center.

Once Elsa and Angel stopped, they discussed what they should do for the middle. A hour later, Elsa suggested that they draw a star and a swirl in the star. Angel liked the idea so much she squealed.

A couple of hours later, Elsa and Anna finished the mandala. They stood back to admire the mandala. So to this day, Elsa and Anna’s mandala is in the Hall of Mandalas as a separate wall where you can admire their teamwork on painting.

That’s the end of the story.

Here’s a story inspired by how I feel about attending the Chromosome 18 Conference:

Once many years, a little girl named Rainbow loved traveling to new places. One day, Rainbow decided to write a story. “Hello! My name is Rainbow. My family and I have been going to a conference called Party Dancers for many years”, wrote Rainbow.

One day at the Party Dancers, she faced many fears in just 1 day. Rainbow was very determined to conquer more fears. A couple of years later at the Party Dancers, Rainbow met a friend she connected with through Bookworm the previous year and had so much fun. Rainbow knew many friends and people that year.

Rainbow even tried to get in the cold pool. This year, Rainbow was pumped to go to the Party Dancers again since she found out most of her friends would be at the Party Dancers. Rainbow traveled to Sugary Land for the Party Dancers.

Again, Rainbow met the same friend again and chatted and had fun. Now, Rainbow was pumped to go to the next Party Dancers conference. Rainbow finished her story and sent it off to the publisher.

The publisher was very impressed. Many years past and Rainbow’s story was now a best seller book.

That’s the end of the 2nd story.

Fundraising for the 2018 Chromosome 18 Family Conference – The Egyptian Eye

Hey, everyone! Remember in previous years when I sold prints or copies of my Egyptian Eye abstract art? I have exciting news!

I’ve decided to sell prints or copies of the Egyptian Eye once again to fundraise and help my family attend the annual Chromosome 18 conference. The print will be about an 8 X 10 size and mounted on foam board or similar ready to hang.

The Chromosome 18 conference helps me get over my fears and my emotions. It helps me feel brave, courageous, and enjoyable. Here’s an example: Last year in July when my family and I were inside the airport, I was fearful, nervous, tired, and afraid; yet, the view I got from the airplane was amazing and it was all worth it.

The really fun part is that YOU get to choose your own price! The base price is $25 to cover cost of printing, mounting, and shipping (US Only – Our overseas friends can email my mom at Camilla Downs @ gmail.com if you’re interested in purchasing a print).

Use this Paypal link and enter your own amount over the $25 base price. For example, if you want to donate $50 towards my fundraiser, then you would enter $75. Go here.

OR …. If you simply want a photo quality print, the base price is $15 to cover cost of printing and shipping. For example, if you wish to donate $25 to my fundraiser, then you would enter $40. Use this Paypal link. (Please note whether you want “Just the Print” or “Mounted Print”)

The Chromosome 18 conference means a lot to me because I get to meet new friends and spend time with old friends. It also means a lot to me because I get to travel to a new city with my family.

I want to check out the swimming pool and have fun with new and old friends. I also want to explore the city if the weather and temperature are good. I also want to check out new restaurants.

Please visit this link to see a summary of all the drawings being offered. Thank you! http://lilliandarnell.com/2018/06/06/fundraising-for-the-2018-chromosome-18-family-conference-in-summary/

Here’s a story inspired by the Egyptian Eye:

The Wise Sultan and The Camel

Once many years ago, a camel walked in the Egyptian desert. The camel wondered if it had an Egyptian eye. So the camel passed a wise sultan who was on his way to a faraway land named Butterfly Land.

The camel asked, “Do you know if I have an Egyptian eye? I’ve been wondering for years now.” The wise sultan chuckled and said, “Certainly seems like you have an Egyptian eye but it is up to you to decide.”

The camel said, “Thanks. Wait, what?” The wise sultan repeated his words. So to thank the wise sultan, the camel offered to give the wise sultan a ride to Butterfly Land. So to this day if you see a camel with an Egyptian eye carrying people and maybe more sultans as well, that very well be the camel you read about in this story.

That’s the end of the story.

Here’s a story inspired by how I feel about attending the Chromosome 18 Conference:

Once many years, a little girl named Rainbow loved traveling to new places. One day, Rainbow decided to write a story. “Hello! My name is Rainbow. My family and I have been going to a conference called Party Dancers for many years”, wrote Rainbow.

One day at the Party Dancers, she faced many fears in just 1 day. Rainbow was very determined to conquer more fears. A couple of years later at the Party Dancers, Rainbow met a friend she connected with through Bookworm the previous year and had so much fun. Rainbow knew many friends and people that year.

Rainbow even tried to get in the cold pool. This year, Rainbow was pumped to go to the Party Dancers again since she found out most of her friends would be at the Party Dancers. Rainbow traveled to Sugary Land for the Party Dancers.

Again, Rainbow met the same friend again and chatted and had fun. Now, Rainbow was pumped to go to the next Party Dancers conference. Rainbow finished her story and sent it off to the publisher.

The publisher was very impressed. Many years past and Rainbow’s story was now a best seller book.

That’s the end of the 2nd story.

Use this Paypal link and enter your own amount over the $25 base price. For example, if you want to donate $50 towards my fundraiser, then you would enter $80. Go here.

Here’s a poem I wrote about the Egyptian Eye from May 2016 – It’s also included in my book:

Enchanted Egyptian Beauty

Triangular prisms sprout rainbows
From the tip of a triangle, triangles peak
everywhere
Amazing colorful teeth pointing toward a
catchy circle
It is an Egyptian Beauty!

I’ll be offering more art pieces, so comment here if you’d like to know when we have those ready too. To learn more about my abstract art, go to http://lilliandarnell.com/lillians-art/.

My mom will be offering one of a kind collections of her nature photography also. And, my brother, Thomas, is offering prints of his minifigure photography.

Use this Paypal link and enter your own amount over the $30 base price. For example, if you want to donate $50 towards my fundraiser, then you would enter $80. Go here.

How My Book Came To Be – Where Would You Fly and Other Magical Stories

Hey, everyone! I wrote this blog post to help you learn more about the book. You can also go to http://lilliandarnell.com/author/ if you want to learn even more about the book. Here’s an interview about the book. I hope you enjoy!

Penny: Hey, Lillian! Are you ready to do your interview regarding your book you wrote?

Lillian: Hey, Penny! I’m very ready!

Penny: Ok then. The first question is What’s your book’s title?

Lillian: That’s an easy answer. The book’s title is Where Would You Fly and Other Magical Stories.

Penny: That’s an awesome book title. What’s your favorite story in Where Would You Fly and Other Magical Stories?

Lillian: My favorite story in Where Would You Fly and Other Magical Stories is all of the stories. If I had chosen just 1 story, I would choose Princess Beauty written in 2017 by me.

Penny: That’s awesome. What inspired you to write these stories that are in Where Would You Fly and Other Magical Stories?

Lillian: Animals, friends, family, nature, quotes, pictures, books, food, and more. More stories inspire me to write more than ever before.

Penny: Wow, that’s impressive. When did you first begin to write?

Lillian: I was 4 years old when I first began to write.

Penny: I just finished reading your book, Lillian. What happens when you write one of your stories?

Lillian: Sometimes, a story will flow like a river through my head. Other times though, I have to do something like drawing or reading to get stories flowing.

Penny: Wow! Do you automatically have ideas for a new story?

Lillian: Sometimes I do but other times I have to do something like taking pictures and reading to get ideas flowing.

Penny: How do you feel about having your own book?

Lillian: At first, I couldn’t believe I was a published author but now I feel amazed and excited that I have my own book and that I’m a published author now.

Penny: What is 18p-?

Lillian: 18p- is where the short arm of chromosome 18 is missing.

Penny: What is the Chromosome 18 Research Society Center?

Lillian: The Chromosome 18 Research Society Center is where they research Chromosome 18. It is located in San Antonio which is in Texas. To learn more about 18p-, go to https://www.chromosome18.org/

Penny: Do you have a link where people can buy your book online?

Lillian: Yes, I have a link where people can buy my book online. The link will send you to a page on my blog where you can learn more about the book. Here’s the link: http://www.lilliandarnell.com/author.

Penny: Should we wrap up this interview, Lillian?

Lillian: Yes, we should wrap up this interview.

Penny: It was great to talk to you about this amazing book of yours and actually meet you.

Lillian: It was great to talk to you about my book. It was great to meet you. See you soon, Penny! Bye, everyone!

Penny: See you soon, Lillian! That’s all until next time, you all! 

Amazing Abstract Handmade Notebooks

Hey, everyone! Every year around this time, I like to create something to fundraise and help my family attend the annual Chromosome 18p- conference. This year I am creating handmade notebooks which can be customized. Here’s a poem to go with the notebook:

Notebook

N is for Nature

O is for Outstanding

T is for Terrific

E is for Eager Writing

B is for Book

O is for Outrageous

O is for Ocean

K is for Kindness

The price offering is at least $25 which includes shipping. You can use this PayPal link or you can mail a check to my mother, Camilla Downs, P.O. 19812, Reno, NV 89511

https://www.paypal.me/camilladowns

 

My handmade notebook example.

You can also purchase prints of my artwork by going here: http://lilliandarnell.com/lillians-art/