Annual Chromosome 18p- Conference 2017

Hey, everyone! This blog post is a summary of what I did at the Chromosome 18p- conference. I hope you enjoy reading this blog post. In case you’re wondering, the links are Thomas’, Camilla’s, Team TLC’s blogs, and Chromosome 18’s website.

July 11th, 2017: 

2017 Chromosome 18 Conference 7.10.17 #3

Borrowed from Camilla                                                         On the airplane waiting to take off.

 

We woke up early that morning to get to the airport and go through security. I went up the stairs to get to the flights while Camilla and Thomas went up the escalator. We got on the airplane right on time thankfully. Sadly, one of the plane engines wouldn’t start. We got to see a beautiful sunrise while we were sitting on the plane waiting for them to fix the plane engine. After the beautiful sunrise, the plane lifted off the ground.

We sat on the plane for about 3 ½ hours and watched clouds. I played a few offline games on my tablet.  I also finished a Hawaiian magazine while on the plane. I got Fritos® chips and honey roasted peanuts which I ate along with honey roasted cashews, apricots, and cereal. To go with that snack, I got some apple juice and water which I drank during the flight.

I also tried to see Lake Michigan when we were about to land but it was too cloudy for that. When we got off the plane in Chicago Midway International Airport, we walked to an elevator and got off on the ground level of the airport.

2017 Chromosome 18 Conference 7.10.17 #5

Waiting for our hotel room.                                Borrowed from Camilla

Camilla found our luggage and then we used a Lyft taxi to get us to Naperville’s Chicago Marriott where we met a few 18q and 18p- friends in the lobby while waiting to get a hotel room. Once we went up to our hotel room, we started unpacking and ate our lunch/snack that Camilla got us from The Artisan Table (the restaurant that’s in the hotel).

After settling in, I went down to the lobby with Thomas to see if any of my 18p- and 18q- friends were there. Camilla came down a little after I went up to tell her that it was almost dinner time. Camilla ran into several of her friends. I ran into a lot of friends at that time including Katie Baker. We took the Marriot shuttle down to Downtown Naperville to have dinner at an Irish pub named Quigley’s.

Once we got back from Quigley’s, I went up to the hotel room to put some things away. After that, I got a little lost trying to find the pool so I sat down and texted Camilla to find out. Although that wasn’t much help, I found the pool much to my luck. Just out the window, I could see a thunderstorm forming.

After we were done checking out the pool, Camilla and I sat on the hotel’s deck outside the hotel’s main entrances when it starting raining. After a few hours sitting there, we headed up to the room to get ready to go to bed.  I also let Macy Miller (a 18p- friend of mine) know that I was at the hotel and going to bed.

July 12th, 2017:

I woke up around 8:00 am and wondered where I was for a second. I remembered shortly after 2 seconds that I was in Naperville.  I wondered where Camilla was. So I messaged Camilla where she was and she had been out on the hotel deck and was right outside hotel room door. I accidentally woke Thomas up while I took a quick bath and watched a thunderstorm while messaging Macy.

I found out that Macy was already in Indiana. After the storm blew away, I prepared to go down to the lobby to see if any friends were there. I managed to catch Rebecca Parker on the elevator. We ate lunch at the Artisan Table. I went up to the room to relax some and check updates from Macy before going down with Camilla to run a quick trip to the bank.

When we got back, we ran into Macy and her family. I went up to the room to relax for a second before heading straight down to the lobby to hang out with Macy.  I hung out with Macy a little more before going with her parents to get registered and shortly, Camilla and I went in to get name tags and hung out with Macy when she came out of the registry room. I stayed down in the lobby with Macy until right before dinner when I went up the elevator to get my sunglasses and quickly went back down to Macy, her family, Camilla, and Thomas.

2017 Chromosome 18 Conference 7.12.17 #8

Macy & I                                                                                                                                        Borrowed from Camilla

Gorgeous clouds in Naperville.                                                                                                                                                                                Taken by me

We went out to dinner with Macy and her family at Bricks Wood Fired Pizza. We saw Katie Baker and Rebecca Parker there as well. We spent an hour there waiting for everyone to finish eating including myself.  Once we got back, we went back in the registry room for the silent auction. After the silent auction was over, I hung out with Macy in the registry room.

Macy wanted to know where the pool was so she could go swimming. So Macy got her parents’ permission so I could show Macy where the pool was. As Macy and I headed out of the registry room, we ran into some of Camilla’s friends. I helped Macy make friends while we walked to the pool entrance.

Once I showed Macy the pool, we headed back to the registry room so Macy could get permission to go swimming. Macy and I went to our hotel rooms to get our swimsuits on. I was one second late but I made it on time.

After Macy soaked her feet a little and dried off, she went up to her hotel room with her parents. I was drying off when she said good night to me. I went outside on the hotel deck with Camilla after drying off. After being outside for an hour, I went up to our hotel room to get ready for bed and go to sleep.

July 13th, 2017:

When I woke up, I once again wondered where Camilla was. This time, she had stayed on the hotel deck outside. I went down to her and I sat in an outdoor chair for 3 to 4 hours before going up to the room again until lunch.

2017 Chromosome 18 Conference 7.13.17 #9

Thomas with friends                                                                                                              Borrowed from Camilla

The registry served lunch and after I finished eating, I hung out with Macy for a half hour until Macy went out for bowling and pizza.  After that, I hung around with some friends didn’t want to go. Camilla and I also had a quick walk around the outside of the hotel. I also hung out at the pool.

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Me with flowers                       Borrowed from Camilla

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Me again with same flowers.                                     Borrowed from Camilla

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Me and Camilla with a few of the same flowers.                               Borrowed from Camilla

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A beautiful flower.                    Borrowed from Camilla

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A beautiful flower.                     Borrowed from Camilla

Macy had already gone to bed by the time I came out of the pool. I went to sleep shortly after midnight.

July 14th, 2017:

2017 Chromosome 18 Conference 7.14.17 #12

Camilla with a friend’s dog.                                            Taken by a friends’ sister.

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Me with Camilla’s friend. Borrowed from Camilla

I woke up and went down to the lobby to sit out on the hotel deck before it got too warm out. After I sat out there, I went up to the room to get 2 books to read on the couch before checking the time to wait for Macy. The registry provided/served lunch again.

2017 Chromosome 18 Conference 7.14.17 #14

Thomas playing the piano with his friends.                                                                               Taken by Camilla’s friend

2017 Chromosome 18 Conference 7.14.17 #13

Thomas with his friend and me with Macy.                                                                   Borrowed from Camilla

After lunch, I hung out with Macy a little before she went to the self-advocate room.  I kept reading until Macy came back out and we hung out. We also went out to dinner at Jason’s Deli. After dinner, I hung out with Macy and her father. I also watched them play Monopoly Deal.

2017 Chromosome 18 Conference 7.14.17 #11

Thomas in the Jacuzzi                                                                                                                                                          Borrowed from Camilla

2017 Chromosome 18 Conference 7.14.17 #22

Me with a few friends.                                              Taken by Camilla’s friend

Rebecca came by and wanted to play Monopoly Deal. I sat there for 3 straight hours before pointing out the time. So I went up to the room to get ready for bed and go to sleep.

July 15th, 2017:

2017 Chromosome 18 Conference 7.15.17 #23

Me and some friends.                                                                                                                   Taken by Camilla’s friend

2017 Chromosome 18 Conference 7.15.17 #25

Me, a friend, Camilla, and Chris Ulmer.                                                                                   Taken by a friend

2017 Chromosome 18 Conference 7.15.17 #26

Me with Chris Ulmer.                                                                                                                    Taken by Camilla

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Camilla with a few of her friends.                                   Taken by Camilla’s friend

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Camilla with one of her friends.                                     Taken by Camilla’s friend

2017 Chromosome 18 Conference 7.15.17 #32

18p- Group Picture.                                                                                                                                  Not sure who took the photo

I slept in late but managed to get down to the lobby before lunch. Again we went with Macy and her family to Jason’s Deli. After lunch, we separated ways for a little bit. During that time, I met Chris Ulmer and he interviewed me. Shortly after that interview, Camilla and I went up to the room to get ready for the group picture and the dance with the dinner. Camilla didn’t have time to style my hair before the group picture. I accidentally put on a too tight dress but didn’t have time to change into a more comfortable dress. After the group picture, Camilla and I went up to the hotel room so I could change into a more comfortable dress. Camilla styled my hair to look pretty. After I finished getting ready, I headed down to the lobby to see if Macy was there. I was about to get back on the elevator to ride up to go to the restroom when Macy got off the elevator and I made the decision to go to the closest restroom in the lobby instead. Macy and I chatted for a few minutes.

2017 Chromosome 18 Conference 7.15.17 #33

Macy and I.                                                                             Borrowed from Camilla

2017 Chromosome 18 Conference 7.15.17 #34

Macy and I.                                         Taken by Camilla’s friend

2017 Chromosome 18 Conference 7.15.17 #35

Me, Macy, and a friend.                                               Taken by Camilla’s friend

2017 Chromosome 18 Conference 7.15.17 #29

Camilla with a few friends.                                             Taken by a friend.

2017 Chromosome 18 Conference 7.15.17 #30

Me with one of Camilla’s friends.                            Taken by Camilla’s friend

2017 Chromosome 18 Conference 7.15.17 #37

Camilla with a friend.                                                                                                               Taken by a friend

2017 Chromosome 18 Conference 7.15.17 #38

Camilla. me, and Chris Ulmer.                                                                            Taken by a friend

2017 Chromosome 18 Conference 7.15.17 #39

Me with Camilla.                                          Taken by a friend

Macy went up to ask her parents if they felt like playing Monopoly Deal. Of course, I watched. A few hours later, Macy headed up to the room with her parents so her parents could get ready. A few minutes later though, Macy came back down and she suggested we take a walk on a few hotel room floors. So we walked around on the 2nd and 3rd floor until Rebecca messaged me asking where I was. Macy and I headed back down to the lobby to the ballroom for dinner. We took our seats and many friends took pictures of us while we waited for dinner to come. After I finished dinner, I went on the dance floor for a little bit before heading to the restroom. I came back and was ready to dance more. Here are a few of the songs that played: Let It Go, We Are Family and Y.M.C.A. We danced for 3 hours straight while Macy went to bed 1 hour into the dancing. So Macy and I said our goodbyes. I was tired and could barely move or hear when the dance finally ended. So I got ready for bed and went to sleep.

July 16th, 2017: 

2017 Chromosome 18 Conference 7.16.17 #44

Me and Thomas at the Riverwalk                               Borrowed from Camilla

2017 Chromosome 18 Conference 7.16.17 #42

Me.                                                     Taken by Camilla

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2017 Chromosome 18 Conference 7.16.17 #48

Me, Camilla, and Thomas

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Thomas in front of a tree.                                                  Taken by Camilla

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Thomas.                                               Taken by Camilla

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I woke up late so I ended up having brunch. After I took a quick shower, we waited for the Marriott shuttle to take us near the Naperville Riverwalk. After we finished exploring, 2017 Chromosome 18 Conference 7.16.17 #40we went back to the hotel to wait for Lyft to come pick us up and drop us off at the Chicago Midway Airport. After we went through security which was pretty quick, we 2017 Chromosome 18 Conference 7.16.17 #432017 Chromosome 18 Conference 7.16.17 #472017 Chromosome 18 Conference 7.16.17 #45found a spot to stand while the airplane was being prepared to board a lot of people on including us. We got on the plane and waited for the plane to take off. Once, we 2017 Chromosome 18 Conference 7.16.17 #46lifted off I once again got honey roasted peanuts and had them with cereal and cashews. I also got a cup of apple juice. Camilla and Thomas took a nap while I watched the gorgeous sunset. After a while, I could see Reno’s highway. A few moments later we landed.

2017 Chromosome 18 Conference 7.16.17 #65

Thomas

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Me.

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I went down the steps while Camilla and Thomas went down the escalator. We then found our luggage. After that, we headed out to our car to drive home. Once we got home, I dug out the most need items from my bag. I went to sleep in my very own bed peacefully.

More links:

http://theteamtlc.com/

https://www.chromosome18.org/

Amazing Abstract Handmade Notebooks

Hey, everyone! Every year around this time, I like to create something to fundraise and help my family attend the annual Chromosome 18p- conference. This year I am creating handmade notebooks which can be customized. Here’s a poem to go with the notebook:

Notebook

N is for Nature

O is for Outstanding

T is for Terrific

E is for Eager Writing

B is for Book

O is for Outrageous

O is for Ocean

K is for Kindness

The price offering is at least $25 which includes shipping. You can use this PayPal link or you can mail a check to my mother, Camilla Downs, P.O. 19812, Reno, NV 89511

https://www.paypal.me/camilladowns

 

My handmade notebook example.

You can also purchase prints of my artwork by going here: http://lilliandarnell.com/lillians-art/

Emotions With Animals: Hyper Beavers

Hey, everyone! Welcome back to the Emotions With Animals blog series. The emotion is hyper and the animal is beaver.

Beavers are hyper because most beavers are nocturnal. They get really hyper when some loud noise scares it away.

People are hyper for several reasons. For example, sugar can make you hyper. They can also get too excited or anxious and that can result in being hyper.

How to Avoid Being Hyper:

Connecting with the hyperness.

Take Deep Breaths.

Practice Meditation.

Practice Mindfulness.

I hope you enjoyed. Visit Camilla at http://www.camilladowns.com/ and Thomas at http://www.thomasadarnell.com/.

Beaver.

Here’s some of the blog posts:

Rainbow Love

(This is a sneak peek below. The picture is included).

Once there lived 2 rainbows who didn’t want to separate for the love of nature. Their names were Candy Rainbow and Princess Rainbow. One day, Candy Rainbow was accidentally separated from Princess. What they didn’t know was the Nature fairy had split them in half.

Latest Weather: Thunderstorms

A thunderstorm is a storm with lightning and thunder. It is produced by a cumulonimbus cloud, usually producing gusty winds, heavy rain and sometimes hail but not always in the Western USA. The basic ingredients used to make a thunderstorm are moisture, unstable air and lift.

20150615-111533.jpg

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I help to support my family with my writings. I share my writings for free for the benefit of others. If you benefit from this writing, would you like to toss a tip in the love offering “bucket”? Oceans of love and gratefulness …xoxo

Rainbow Love

Hey, everyone! This story is about rainbows and love. I hope you enjoy!

Once there lived 2 rainbows who didn’t want to separate for the love of nature. Their names were Candy Rainbow and Princess Rainbow. One day, Candy Rainbow was accidentally separated from Princess. What they didn’t know was the Nature fairy had split them in half.

Candy desperately looked for Princess but there was no sign of her. Meanwhile, Princess was where Candy wasn’t. She was anxious to find him but the Nature fairy wouldn’t let her. Candy got up to ask the Nature Fairy. What the fairy said, “No, I haven’t seen her. I didn’t separate you.”

Candy thought the fairy was being suspicious. Princess started suspecting the fairy. After a year past, they accidentally ran into each other. When the fairy found out, she was furious.

The fairy decided to put Princess invisible so she couldn’t be seen when they bumped into each other. Candy tried to explain to the Nature fairy that rainbow magic was more powerful than fairy magic. Since the nature fairy wouldn’t listen, Candy decided to show her what he tried to explain.

So his plan was to use his magic and power to get Princess out of the invisible world. So when Princess saw he was stretching out to use his power, she decided to reach over and touch his stretched arc. Candy felt lighter somehow but he didn’t know how.

Suddenly the invisible spell broke. The fairy was shocked at what happened but the fairy had to vanish. “It was me who helped you, Candy”, said Princess softly. “Thank you, Princess!” and the rainbows’ love was returned.

Princess thought if people saw them, it would be easier to have 1 rainbow be invisible. Princess decided to go invisible but Candy was able to see her. Every once in awhile, Princess appeared behind Candy. That is why some people see double or triple rainbows.

Bright rainbow!

Continue reading

The Last Cookie: What Bellina and Mermaidia Will Do Next

Hey, everyone! The final part of The Last Cookie was delayed because I forgotten until Friday. So here it is:

Mermaidia sat down with Bellina. While Mermaidia and Bellina were eating their half of a cookie, they began to talk. Here is one of the things Mermaidia said, “I waited 108 hours to find out whether you would say yes.”

After they were done talking, they went to bed. When they woke up in the morning, they were very proud. After that, when they wanted a cookie they used the technique that Mermaidia used. You can use this very technique.

This is the end of part 4. Tune in for more stories, facts, photos, and more! Go to Camilla’s, Thomas’s, and Team TLC’s blog here.

Yummy Chocolate Chip Cookie!

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I help to support my family with my writings. I share my writings for free for the benefit of others. If you benefit from this writing, would you like to toss a tip in the love offering “bucket”? Oceans of love and gratefulness …xoxo

Enchanted Egyptian Beauty

Hey there, everyone! Remember all the years in the past,  when I decided to sell copies of the Egyptian Eye? I decided to sell the copies of my Egyptian Eye again this year. Here is a poem about it.

Triangular prisms sprout rainbows
From the tip of a triangle, triangles peak everywhere
Amazing colorful teeth pointing toward a catchy circle
It is an Egyptian Beauty!

I hope you enjoyed my poem!


About the Egyptian Eye:

I made this Egyptian Eye masterpiece when I was young. (I can’t remember what date I finished it and started it). Camilla mentioned that it looked like an Egyptian Eye. So the name became Egyptian Eye. I used the Egyptian Eye drawing in 2010 for raising money for getting to the conference in San Antonio, TX. I decided that it went so well that I did it for the conference last year in Salt Lake City, UT. It was a great success last year and I wanted to do that idea again this year for San Antonio. Find out more at http://lilliandarnell.com/lillians-art/ for the pricing. Thanks to all of you got a copy of the Egyptian Eye.


 

About Me:

I am the artist of the Egyptian Eye. I am a soon to be abstract artist of abstract rocks, paintings, and drawings. Find out more about about me in my About Lillian page. Thank you!

People To Thank For The Conference

Hi there! Click here for Thomas’s version of this thank-you post!

 

I’d like to thank Justin Hope Foundation, Robert Downs, Nevada Government’s Council On Development Disabilities, Patty Romano, and Frank Romano.

 

My favorite part of the conference was hanging out with my friends in the pool and anywhere else in the hotel. The feeling felt great, excited, and good!

Stamford, CT

I can’t wait to go to Stamford, CT! See reasons below!

  • Explore

  • Traveling

  • Seeing friends

  • Having fun
  • Swimming

 

Can you help us get ready for it?

 

Visit the About The Things We Accept page for more!

 

Scavenger Hunt at Grassroots Bookstore and RC Willeys 6.11.12

Did you know Grassroots Books? Check grassrootsbooks.com. Also we went on a scavenger hunt at Grassroots Bookstore, but first our mom went to the post office to send some of her books. Then lastly we went to RC Willey’s. We did not get home until 5:30. Check googlemaps.com. We were exhausted.