The Annual Chromosome 18 Conference 2019: Part 5

Hey, everyone! I just got back to Colorado Springs from the conference on July 27th. This blog post is a summary of what I did at the annual Chromosome 18p- conference this year. In case you are wondering, these are Thomas’s, Camilla’s, mine, and Chromosome 18’s website.

Here are some related blog posts: http://lilliandarnell.com/2018/07/06/annual-chromosome-18-conference-2018-part-1/http://lilliandarnell.com/2018/06/15/my-adventure-to-surprise-part-1/http://lilliandarnell.com/2017/09/13/annual-chromosome-18p-conference-2017/ I hope you enjoy!

July 22nd: 

I woke up around 7:00 am to Camilla closing the blackout curtains so we could sleep a little longer. So I went back to sleep and winded up waking up at 11:00am. My grand aunt Debbie Burton had already landed at the Denver International Airport by that point.

So I messaged her to keep her company while she was waiting on Patty and Frank (the Romano Duo) to get there. I also kept Patty company through text throughout the day. Almost everyone wondered where I was including Rebecca and Macy.

I also took a shower (that was an accomplishment around Christmas 2018) and it felt so natural because I had done it at Patty and Frank’s home many times there. Afterward, I ate a few crackers before going to meet up with Macy by the elevators.

In the conference rooms,  I ate some of my assigned lunch served by the Marriott staff but provided by the registry slowly and cautiously. After I finished eating, I messaged Patty and found out they got stuck in the same traffic near Glenwood Springs.

Knowing that Patty overheated easily, I asked if they pulled over at the White River National Forest. Patty messaged me saying they did but just got back on the highway. After that, they got out of the traffic jam.

Then I went up with Macy to roam around the hallways. I messaged Debbie again to check on her as Patty was worried that she wasn’t okay sitting there all by herself. So I messaged Patty to tell her that she was okay.

I asked Patty what room number they thought they would get. Then Macy and I headed to our hotel room so we could hang out with Camilla. Afterward, Macy and I headed to her family’s hotel room so Macy could go to the restroom.

After that, we went back down to the lobby and I sat with Macy outside the Self Advocate Room for a minute before realizing I was getting nauseous again so I told Macy and then I went back up to the hotel room alone,

Of course, I wasn’t very happy that I had to leave Macy sitting there alone so as soon as I got up into the hotel room I messaged Macy to let her know I was resting in the hotel room.

In return, she told that she was in the Self Advocate Room again. Eventually, I found I was able to not be nauseous while sitting down so I went down to the lobby and stayed sitting there.

Rebecca and Lauren eventually came over to sit by me while I did things on my phone & message Debbie and Patty. Camilla eventually came down and she asked if I wanted more water. I said yes so I got up so I could order water with Camilla’s help.

I eventually started getting nauseous again. Once I got back to the couch, I got a message from Macy asking where I was. I told her that I was over by Rebecca and Lauren. I eventually got up so I could go with Macy to roam hallways again before she had to go back down to the self-advocate room.

I eventually went back down to the lobby with her. I asked Patty and Frank what their estimated time for their arrival was. She said 4:05 pm the first time then said 4:30 pm the next time.

At 4:00 pm we went outside for a group photo. While we were out there, I saw many cars that looked very close to Patty and Frank’s car. Right when Macy, Lauren, and I sat down together, Patty, Frank, and Debbie came through the doors.

Frank went to register Patty, Debbie, and himself. Debbie went looking for the restrooms. While Patty talked with Camilla and met Macy. Then Debbie came back to join Patty and Frank eventually came over.

Patty gave me the hotel room key. Then after I saw Macy off. I saw Debbie, Patty, Camilla, and Frank waiting for an elevator so I joined them. I got off on the 4th floor while everyone else got off the elevator on the 6th floor.

I eventually went to the lobby where they were eating. I also saw Macy’s father and mother eating together. I pointed it out to Camilla and eventually, Macy’s father came over to introduce himself. Macy’s mother looked over at me and asked me if I was still going to Olive Garden.

And I told her that I think I would. Macy’s mother asked if Macy would text me when they are done at Bulid-A-Bear and I told her yes. After Patty, Debbie, Frank, and Camilla got done eating I headed outside with them.

It felt very good outside. I then headed up to their room with them. While I was up there, Macy messaged me saying they were almost at Olive Garden. I then got Camilla to drive me there in the dark.

I then ordered french fries and a straw for my water. I winded up spilling water on the table but luckily no one noticed but me. It was a little too full for me. I then got my french fries.

It was a very small portion of french fries so I was able to eat all of them without it upsetting my stomach luckily. Macy finished shortly after me. At around 10:00 pm, the first Marriott shuttle arrived. Macy and I got on together. We sat together too.

Lauren was on the other side of Macy. I was happy but tired. Macy had to go straight up to her hotel room and Lauren and I went up too. I dropped Macy off by her hotel room. Then I headed to our room to drop off the money then I went to find Camilla in the lobby.

Of course, Camilla was talking with friends. I talked some too. It was 11:00 pm when me and Camilla headed up to the room. I then got ready for bed. Then I played on my phone a little until my eyes would barely stay open so I got up to go to the restroom.

After that, I went to sleep at around 1:00 am or 2:00 am.

View of the mountains from our hotel room. Taken by me!

The view from our hotel room. Taken by me!

What is your favorite hotel so far? I would love to see your answers in the comments if it feels right to you!

Click here for Part 6!!!