Annual Chromosome 18 Conference Part 2

Hey, everyone! I just got back from a trip to Baltimore for the annual Chromosome 18 conference. This blog post is a summary of what I did at the Chromosome 18p- conference this year. I hope you enjoy reading this blog post. In case you’re wondering, the links are Thomas’, Camilla’s, and Chromosome 18’s website.

Here are some similar blog posts: http://lilliandarnell.com/2018/06/15/my-adventure-to-surprise-part-1/ and http://lilliandarnell.com/2017/09/13/annual-chromosome-18p-conference-2017/. Anyway, I hope you enjoy!

June 30th: 

I woke up at 8:30 am the next morning to plug up my electronics. After I did that, I fell back to sleep until 10:00 am or 11:00 am. Once I woke up again, I felt much more relaxed and relieved.

So I took my time eating breakfast, getting dressed, and eating candy (it was Candy Day). After I finished eating my candy, I went to the elevator area to head down to the lobby.

So I waited for the elevator to come. I got down there at 11:30 am and I stayed down until 11:40 am when I started to get hungry. I ran into a lot of my 18 p and q friends as well. So I headed back to the elevators to head to the room, I ate a fruit bar and grabbed a sip of water as well in the room.

The elevators had funky music playing and had blue lights on. It took some getting used to that. Anyway, the elevators were interesting. You could actually hear the robotic voice of the elevator on a different floor and you could hear the elevator stopping at your floor before it even opened.

Once again, I headed back down on the elevators. I got back down there exactly at 11:50 am and I chose a good spot to sit where I could greet my friends. Camilla came and gave me french fries.

After I finished eating lunch, I chatted with Macy through Facebook Video Chat. I took a selfie right there too as well. I went up to the room again at 5:00 pm to eat dinner and decided to check out the 5th floor early so I was comfortable with where everything was.

After that, I went to the 7th floor to take a sneak peak of the pool. When I finished, I went up to the room to get ready for bed and finish chatting with Macy for the night.

Around 12:30 am, I fell asleep as I knew that Sunday would come more quickly if I went to sleep earlier.

A selfie of me.

See part 3 here

Annual Chromosome 18 Conference 2018 Part 1

Hey, everyone! I just got back from a trip to Baltimore for the annual Chromosome 18 conference. This blog post is a summary of what I did at the Chromosome 18p- conference this year. I hope you enjoy reading this blog post. In case you’re wondering, the links are Thomas’, Camilla’s, and Chromosome 18’s website.

Here are some similar blog posts: http://lilliandarnell.com/2018/06/15/my-adventure-to-surprise-part-1/ and http://lilliandarnell.com/2017/09/13/annual-chromosome-18p-conference-2017/. Anyway, I hope you enjoy!

June 29th: 

We woke up early to get to the airport and through security. This time I went up the escalator with Camilla holding my hand since I was scared while Thomas went up the stairs.

We got on the airplane right on time. We saw a beautiful sunrise as we were flying up into the sky. The sunrise was amazing. We sat on the first plane for about an hour and watched clouds go by.

I only had apple juice and water for the first plane flight since the flight was quick and because I wasn’t hungry. I also played a few games on my phone and tablet as well and read a book. Once we landed at the McCarran International Airport which is in Las Vegas, we sat down for a couple of minutes before we pre-boarded the second and final plane flight.

That flight happened to be the longest flight ever. Anyway, on that flight, I had honey roasted cashews, Fritos® chips, and lightly salted peanuts (they stopped making the honey roasted peanuts).

I also had apple juice and water again on this flight. I played some games on my tablet and on my phone. I even read a chapter in the book I was reading. We sat on the plane for about 4 hours. Once we got closer to Baltimore, I started recording our landing in Baltimore.

Once we landed, Camilla only found one suitcase sadly. Around the same time, Camilla’s friend was here to drive us to the hotel. So Camilla discovered the other suitcase was held back in Colorado but it came in 2 hours later.

Camilla’s friend eventually went back to get the suitcase for us. We discovered that we were the first ones to arrive at the hotel so it was a little boring but I was able to keep myself busy.

I talked to Macy Miller (a close 18p- friend of mine) through Facebook Messenger. We were both very excited to see each other again in 2 days. I also texted Rebecca Parker (a close 18p- friend of mine) and Katie Baker (a close friend of mine) to let them know I was at the hotel.

Camilla ordered dinner from room service which was french fries for me. I was so tired that I fell asleep without cleaning off the bed of my stuff and without turning off the booklight.

A selfie of me on the airplane

Pretty sky.

Awesome sky.

Pretty sky.

Outstanding view!

Striking view!

Cool sky!

See part 2 here

My Adventure To Surprise Part 13

Hey, everyone! I went to Surprise, AZ for the end of May/beginning of June with my grandparents (also known as The Romano Duo). I would just like to share my adventure with you. By the way, some of the times aren’t accurate. Anyhow, I hope you enjoy!

June 9th, 2018:

I woke up at 7:10 am and we got into the car at 9:00 am but we stopped by the store so Frank could get gas, Patty could get breakfast, and have fun. Anyway, at 10:00 am we were on our way.

The Motel 6 had some decent beds. I was really comfy at 7:10 am so I didn’t want to get up at all. I knew that I had to get up sooner or later though. Once I was out of bed, I was very relaxed and refreshed.

At 12:00 pm, Frank stopped at a gas station. I also ate my lunch when Frank stopped at the gas station. After 12:00 pm, we drove to Fernley and saw the Love’s gas station where Frank stopped for gas the last time.

I saw the mountains that hide Reno and Sparks shortly around 2:26 pm which is always awesome to see. Around the same time, we arrived back in Reno. This is where the 2-week vacation ends.

Selfie of me

That’s the end of My Adventure In Surprise! Thanks to Patty and Frank for making the trip a great experience!

My Adventure To Surprise Part 12

Hey, everyone! I went to Surprise, AZ for the end of May/beginning of June with my grandparents (also known as The Romano Duo). I would just like to share my adventure with you. By the way, some of the times aren’t accurate. Anyhow, I hope you enjoy!

June 9th, 2018: 

I woke up at 5:30 am (surprisingly) but laid there until 6:30 am. When I got up, I went directly to the restroom. Once I came out, I went into the bedroom to put on my clothes.

After I got dressed, I went to eat breakfast and eat my candy. Then I sat down and relaxed until 9:30 am when I was getting anxious. Around 10:00 am, we stopped so Patty and Frank could have their adult beverage.

Anyway, by 11:00 am we were on our way to Kingman. As usual at 12:15 pm, got some french fries in Burger In-N-Out but fortunately didn’t need to go to the bathroom. We were back on the road and we took in views and I talked to Rebecca through text.

We arrived at Beatty at 4:00 pm. We pulled into the Motel 6 parking lot and we got most of the stuff we needed for the night out of the car. By the way, Robert came too but anyway, we went to Denny’s across the parking lot in the heat.

When we were done, we went to the store that has candy, food, and more. We went through the back door to get to Motel 6 (the hotel we stayed at). Anyway, I finished eating dinner and jellybeans. After, I got ready for bed and stayed up. I fell asleep at 11:30 pm.

Selfie of me before going to bed

Selfie of me in the car

See part 13 (last part) here

My Adventure To Surprise Part 11

Hey, everyone! I went to Surprise, AZ for the end of May/beginning of June with my grandparents (also known as The Romano Duo). I would just like to share my adventure with you. By the way, some of the times aren’t accurate. Anyhow, I hope you enjoy!

June 8th, 2018: 

I woke up at 8:00 am with itchy ankles. When I went into the living room, I noticed familiar swollen bumps (mosquito bites). So I spent the day trying to stay off my ankle but I did get up to pack a few things throughout the day.

I ate lunch at 1:00 pm. I also colored that afternoon until evening. After dinner, I colored until 9:00 pm. I started my schedule and finished at 9:35 pm leaving me 35 minutes to spare so I started playing games on my phone until it went dead.

By that time, it was 9:57 pm so I just helped Patty and Frank with decisions for the trip back to Reno until 10:00 pm when I got into bed. I tried to go to sleep at 11:15 pm but realized I needed to go to the restroom so it wasn’t until 11:30 pm when I went to sleep.

Mosquito bites on my ankle

Mosquito bite on the bottom of my foot

See part 12 here

My Adventure To Surprise Part 10

Hey, everyone! I went to Surprise, AZ for the end of May/beginning of June with my grandparents (also known as The Romano Duo). I would just like to share my adventure with you. By the way, some of the times aren’t accurate. Anyhow, I hope you enjoy!

June 6th, 2018:

I woke up around 8:00 am. I decided to have a resting day. After breakfast, I played on my phones and read. After lunch though, I got ready to get in the pool and only stayed in the pool for 30 minutes.

Afterward, I got dressed and headed into the living room to color some more in the giant coloring pad.

After dinner, I continued coloring and played on my phone some until I started my schedule. As usual, I got in bed at 10:00 pm but stayed awake until a little past midnight.

As you should know, I went to sleep past midnight.

June 7th, 2018: 

I woke up around 7:00 am. So I got up and decided to feel relaxed until the end of my trip. Anyway, I ate breakfast and decided to color in the giant coloring pad. I started feeling hungry again. After I ate, I colored more, read, and played on my phone.

After dinner though, I started coloring some more. Afterward, I took a long break and sat outside until I had to do my schedule. I managed to get into bed at 10:00 pm. I went to sleep shortly after midnight.

Me with a pool noodle

Me with Frank Romano

Amazing sunset

Gorgeous sunset

See part 11 here

My Adventure To Surprise Part 9

Hey, everyone! I went to Surprise, AZ for the end of May/beginning of June with my grandparents (also known as The Romano Duo). I would just like to share my adventure with you. By the way, some of the times aren’t accurate. Anyhow, I hope you enjoy!

June 4th, 2018:

I woke up around 8:00 am. I decided to make that day a relaxing day as well. So, I just played on my phones, ate meals, and colored in my giant coloring pad until my finger hurt. While I took a break, I sat outside and got to see an awesome sunset and a real hummingbird. I was able to get a few pictures (the hummingbird is now a guest visitor at the Romano Duo backyard)

Anyway, I got into to bed around 10:00 pm that night but I stayed up until 12:30 am that night.

June 5th, 2018:

I woke up at 9:00 am that day. Shortly after breakfast, I played on my phones and read. After lunch though, Patty and I went to the Surprise, AZ library (has a real name) to get me new books.

We were in and out in just 30 minutes which was crazy because I usually take 1 to 2 hours in libraries. Anyway once we got back, I colored some more. I managed to take a picture of a fully bloomed rose plant as well that day.

Around 8:30 pm, I sat outside to get fresh air. I also got more magical photos of the sunset. Again,  I got into bed around 10:00 am but played on my phone and read. Around 12:00 am, I went to sleep.

Me wearing a beautiful new shirt.

Sunset

Beautiful sunset

Beautiful clouds with trees

Gorgeous sky

Awesome sky with the sun shining

A camouflaged clock that shows the time and temperature

Magnificent sky!

Unique sky!

Beautiful rose

See part 10 here

My Adventure To Surprise Part 8

Hey, everyone! I went to Surprise, AZ for the end of May/beginning of June with my grandparents (also known as The Romano Duo). I would just like to share my adventure with you. By the way, some of the times aren’t accurate. Anyhow, I hope you enjoy!

June 3rd, 2018: 

I woke up at 10:00 am that day. After breakfast, I got ready to go to Michael’s. After I got ready, I went into the bedroom to put on my sandals. After I got my water, we headed to the car.

We went to Trader Joe’s before Michael’s to get some more food for me. After we got back in the car, we headed to Michael’s so Frank could drop Patty and me off at Michael’s while Frank went to Wal-Mart.

We took our time looking and found a giant coloring book and a wooden birdhouse to paint as well as some special pens and dual markers. After we finished, we explored and winded up finding me more canvas for paintings.

By the time we were done at Michael’s, it was 3:00 pm so I had a short lunch and saved the rest as a snack.

It was 4:00 pm when I was eating but at 4:30 pm, I was hungry again so I ate the rest as a snack. I was still hungry when dinner was ready so I was able to eat a lot.

After dinner, Patty found a movie for us to watch. After the movie was over, I started my schedule. Once again, I was able to get into bed at 10:00 pm.

I went to sleep around 1:00 pm that night.

Rainbow ball. I borrowed this photo from Google Images

See Part 9 here

My Adventure To Surprise Part 7

Hey, everyone! I went to Surprise, AZ for the end of May/beginning of June with my grandparents (also known as The Romano Duo). I would just like to share my adventure with you. By the way, some of the times aren’t accurate. Anyhow, I hope you enjoy!

June 2nd, 2018:

I woke up around 8:00 am that morning. I was excited to start a new day in Surprise, AZ. I got up and started the day just like any other day. After breakfast and candy, I played on my phones and read a little. After lunch though, I was talking to Patty and Frank.

I also worked on a blog post which is http://lilliandarnell.com/2018/06/05/fundraising-for-the-2018-chromosome-18-family-conference-happy-world/ if you want to check it out.

After dinner, we started watching a movie on Patty and Frank’s TV (don’t care about TV but I was bored so I was grateful for something to do). Around 5 minutes into the movie, I stepped out front to see how hot it was.

It was a warmish kind of hot that night so Patty, Frank, and I went on a short walk to the empty park. I took a couple of pictures as well that day.

Once we got back, we started the movie back and finished watching the movie shortly after 9:00 pm. Afterward, I started doing my schedule. I finished up and got in bed at 10:00 pm. I stayed awake until 2:00 in the morning.

Me messing with an old-fashioned selfie stick.

Me with Patty

Tree. A little blurry though

Lamppost light shining on a tree.

See Part 8 here

My Adventure To Surprise Part 6

Hey, everyone! I went to Surprise, AZ for the end of May/beginning of June with my grandparents (also known as The Romano Duo). I would just like to share my adventure with you. By the way, some of the times aren’t accurate. Anyhow, I hope you enjoy!

May 31st, 2018:

I woke up around 9:00 am and just hung around the house all day.

Anyway, it was a little bit of a relaxing day for me. Around 9:30 pm, I coded and got ready for bed (regardless, I was very tired). I hit the pillows late that night again (What I mean by that is I fell asleep).

June 1st, 2018: 

I woke up around 7:00 am. Anyway, I took my time waiting for Patty to be done in their bedroom. Before breakfast, Frank said, “Happy National Donut Day” as I told him the day before. After breakfast, I wrote a lot. After lunch, I had a bit of fun swimming.

I also wanted to add that I finished a blog post which is: http://lilliandarnell.com/2018/06/01/how-donuts-came-to-be/ sometime that day.

After swimming, I got dressed and had Frank get the powdered donut out of the donut package (we got them sometime that week). After dinner, I talked to Patty and Frank some.

Anyway, I started getting ready for bed after a conversation with Patty and Frank. Afterward, I got in the bed around 10:00 pm even though I stayed up way later than that. Shortly around 12:30 pm, I fell asleep.

Hawaiian flower

See part 7 here